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Blood Cancers & Disorders | Last Active: Jan 11 5:32pm | Replies (5)
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@rocksology oh not at all. I was speaking for myself. As I read what I’d written I thought, “Gee that sounds know-it-allish” so I was trying not to sound like an authority. Not well, as I absolutely did not mean for you to feel that way.
Honestly the more I read about MGUS the less I feel that I know. There is so much to know and the information is changing so quickly. I have to remind myself that that’s a good thing because that means that the researchers are steps closer to knowing how to treat these blood disorders.
So I apologize that I did not express myself well. It sounds like you are also a MGUS information investigator, so will you let me know what else you learn?
Patty
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@pmm oh geez! How i wish it would go away! But it won’t! Stay strong.. educate yourself! I am 60
I had surgery April 26,2023…i got a dvt 3 days later…i fount out in June 2023 i had mgus IgG lambda 1.6 mg/dl. In july 2023 i has an“””Ischemic stroke (by the grace of god i was on blood thinners from my DVT in late April 2023! My monoclonal cells increased from 1.6 to 1.8 to 2.0 to 2.2 g/dl. I finally had a bone marrow biopsy in May 2025 with 20-30% plasma cells with lambda restriction, flc ratio less than 0.1 g /dl and monoclonal protein 2.2 g/dl. I had two mri’s - first showing 1 focal enhancements 13 mm on first and on second mri 10/31- 3 focal enhancements 5 x 8 mm in pubic bone and 5 mm x 6 mm on R sacral ala and 4 mm x 4 mm on left sacral ala.
IgG: very high (2,803) monoclonal / involved immunoglobulin
IgA: very low (16) suppressed
IgM: low (50) suppressed
It sucks. But it never goes away. I am learning to live with the changes in my strength, endurance and health. I have sometimes done this gracefully and sometimes not. Please give yourself the space to find your strength to say that you are bigger, better and stronger than MGUS! You have a lot of support here!!
Yoga, meditation, walking, art, music are all great healing agents!