Does anyone know how en plaque tentorial meningioma would be treated?

Hi @pleu, welcome. Tentorial meningiomas are rare tumors located along the surface of the tentorium cerebella in the brain. Surgery may not always be an option. In some cases, radiosurgery or gamma knife radiosurgery is an option.

It sounds like your meningioma has an additional complication of “en plague”. This is a sub-type that involved a carpet or sheet-like lesion that infiltrates the dura (thick membrane that surrounds the brain and spinal cord) and sometimes invades the bone.

Pleu, were you recently diagnosed with meningioma? Have you discussed treatment options with a neurosurgeon?

You have actually explained more about it than she did. She basically told me after the first MRI that I wasn’t interesting enough for her. She has never called after the second. She is the only one in the area that does meningioma surgery.
I have filled out a lot of paperwork for a consult with Mayo, but have never heard back, I’m not sure what I am doing wrong.
I do know I don’t want the one here.

(As in the neurosurgeon at UAMS at Little Rock, AR)

Pleu, You may wish to follow up with Mayo Clinic by calling them. Mayo Clinic has a special 48-hour access program for brain tumors. Experts at the Mayo Clinic can help navigate your healthcare journey, answer your questions and guide you through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours. Be sure to mention the Brain Tumor 48-hour Access program.

Here are the numbers for all 3 Mayo Clinic locations: http://mayocl.in/1mtmR63

Thank you.

Pleu, any updates?

Yes. Appointments are scheduled for beginning of February. Your help was invaluable.

So good to hear. Which location are you going to? Are you preparing questions for your appointment?

Rochester.
I have questions, but not a lot. Any additional questions would be from what they tell me at the visits. I just don’t have a lot of information to question.

Pleu, while not specifically a question, I always make sure to clear on what the next step is before leaving an appointment. I also use the "talk back" method to make sure I have understood something that I'm not sure of. This means repeating back in my own words what I think the doctor has said. This gives the doctor the opportunity to see if s/he didn't explain something thoroughly or if there is a gap in my understanding.

You might find these tips from fellow members helpful:
- Your Tips on How to Get Off to the Best Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/

I'll be interested in hearing what you learn.