Does anyone have nephrocalcinosis? Have you had a kidney transplant?

Posted by mm1210 @mm1210, Nov 13 3:48pm

Hi! I was diagnosed with nephrocalcinosis when I was 7 years old. They thought I'd need a kidney transplant by age 13. I'm 38 now and haven't had a transplant – always seems to be "10-15 years" in the future and I feel so lucky I haven't had to do it yet. But it's always been a mystery to my doctors as to what's causing the calcification of my kidneys. Does anyone else here have it too? If so, have you had a transplant and how did that go?

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