Does anyone have multiple diagnosed illnesses besides P/D? I have 5+
Besides a diagnosis of Parkinson's Disease, I have Peripheral Neuropathy, Irregular heart beat (Bigeminy), Epilepsy, mild Cognitive Decline, Raynaud's Syndrome, vision problems, GI problems, and a host of other disorders/problems all of which may be non-motor P/D symptoms/problems/disorders (which would fill up the whole page!)
Please let me know if and what you have besides P/D! I'm on multiple Mayo groups and many topics sound oh,so Parkinson's to me.
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Very early Covid became long Covid. From that ET (Pots, and nor Parkinson’s.
One autoimmune dis ease can easily lead to others.
ET is chronic leukemia
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1 ReactionMy husband has PD, diabetes, PAD, vascular problems, chronic kidney disease, and is recovering from rhabdomyolysis. We are both 72, married in 2022, moved this summer to a 100+year old building with 26 steps to our apartment. I love him dearly as he does me. We just keep going. We fully believe God is in control and He is with us.
A respected Doctor here in North Carolina recommends reaching out to Dr. Laurie Mischley at Seattle Integrative Medicine, as she specializes in this field. She also wrote a book called Natural Therapies for Parkinson's Disease, which may be worth checking out. I believe her work goes beyond PD.
Dr. Mischley works via telehealth.
Seattle Integrative Medicine: (206) 525-8012
https://seattleintegrativemedicine.com/
Believe me, I have no interest in SIM other than to help those with these miserable disorders.
Regards,
Sagan
@jatonlouise ❤️ thank you for saying that out loud! Both my co-morbidities seem to be on the slow train at the moment, but I am rooting for one of them catch up and beat the PD train🤣😂. Exercising furiously in hopes of slowing the PD down. In the mean time thoroughly enjoying going through what I can still do of my bucket list.
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1 Reaction@jatonlouise OMG, what a time you had. Well I have an ENT apointment coming up, just not soon enough for my liking. I'll definately ask about the possibility of planus lichen and ask him about a mucus membrane specialist ... I might be able to find someone a train ride away (I live in a specialist dead zone) and hopefully I can sneak in a mention of the meds you got.
thank you so much for the info.
Thanks for the hug! It was a good one. 🤗🥰
@bruizersmom
I can never keep it straight - just know 1 word is Lichen and the other Planus. I had a devil of a time finding out ehat it was. Silly me ! It's a skin problem, so I thought a dermitologust would have a clue. Nope! It's in my mouyh so I though my dentist might know what it was. Nope! So I went back to the dermitologist and the other dr. In the practice overheard our conversation and referred me to a practice specializing in disorders of the mucous nembranes. So that's where I got the diagnosis. The treatment is a salve with cortizone specially firmulated for inside the mouth.
Volon A haftsalbe
1mg/g
Triamcinolonacetonid
At least that's what it's called in Germany. The clinic I went to said I should come in to have it checked every 6 months. About 5% of the people who have this get mouth cancer so I should come back in 6 mos. But shortly thereafter I trued to crossed the street at a place I should have kniwn better than to try, and I underestimated how fast a car was coming while simultaneousely overestimated how fast I could walk and tried to cross the street but fell in front of a car -- scaring a poor young man to death--and ended up shattering breaking my arm which is niw keot together with a tutanium rod. This whole littke episode was probably related to my PD (which had not yet been diagnosed). Hence, I didn't keep my folliw-up with the mucus membrane clinic and by the timr my arm healed, I had started my magical mystery tour down the yellow brick road to PD diagnosis. -- a 2-3 year diversion. But my primary care gives me my prescrption for the cortizone salve. I eventually need to get it checked again to make sure I haven't welcomed cancer on my list of maladies. Jimmy the Greek in Las Vegas may be offering odds on thus so perhaos I ought to touch base with him . Hmmmm I'm seeing an imspiration for a board game for PD folks. We could call it "Mr. PD meets zMs. Co-morbidities". With the goal being to have your co- morbidities rescue you from Mr. PD. so you can hop onpathyto the Black Train before Stage 5 visits you.
BTW, if zlMs. Peripheral Myopathy has been to vidit she failed to leave a calling card thus far. O, I forgot about my sleep apnea. Wrestling with the CPAP with my shattered arm and my journey to the magical PDLandia became a tad much, and when I got a notice that the asbestos insulation in my CPAP was connected to cancer, I figured I' had enough justification for canceling my lease on the CPAP.
Don't know what specialty treats Planus Lichen Planus ( and it might be different in the US than it is in Germany. Options could be : 1) Immunologist or allergy doctor because it is an autoimmune disease: 2. dermatologist because it's skin;; 3. dentist because it's in your .mouth; 4 oncoligist becsuse it's a precursor to cancer;5. ENT because it's in the same neighborhood with your mouth.
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3 Reactions@janna2 , oh yes. That she is (jatonlouiese, of course). I try to put some fun into this medical madness, but I continuously fail!
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2 Reactions@jatonlouise Oh my Queen of satire; I just wanted to say how much I appreciate your posts! You are such an inspiration as I enter my “but wait-there’s more” phase. I aspire to keep myself, my doctors and my friends laughing. Thank you for being the light that shows through the cracks.
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1 Reaction@bruizersmom - I'll send you a sleep noodle if you'll send me that dog!