Does anyone have multiple diagnosed illnesses besides P/D? I have 5+

Posted by bruizersmom @bruizersmom, Oct 28 1:33pm

Besides a diagnosis of Parkinson's Disease, I have Peripheral Neuropathy, Irregular heart beat (Bigeminy), Epilepsy, mild Cognitive Decline, Raynaud's Syndrome, vision problems, GI problems, and a host of other disorders/problems all of which may be non-motor P/D symptoms/problems/disorders (which would fill up the whole page!)
Please let me know if and what you have besides P/D! I'm on multiple Mayo groups and many topics sound oh,so Parkinson's to me.

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Profile picture for barryl @barryl

I have Parkinson's Disease, Ischemic Heart Disease, Hypothyroidism, severe sleep apnea, blood clots in legs and lungs, glaucoma, severe hearing loss. The symptoms from all of these conditions are hard to separate from each other. Which disease is causing each symptom is very difficult to know.

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Thanks for the hug! It was a good one. 🤗🥰

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Profile picture for bruizersmom @bruizersmom

Well, so far, @jatonlouise, I just learned that I probably have Planus Lichen (which AI says is Lichen Planus) because I have all the symptoms thereof (gee, thanks, jl) and my Thyroid has gone high and low, now being ignored, yes, your toenail fungus will spread (mine did), but I don't take meds for my osteopenia. But surely you must have Peripheral Neuropathy, Raynaud's, ummmm well I have some stuff I ignore because no one cares to do anything about it... Rosaecia, Bigeminy, had Tachycardia, but I had an ablation. Doesn't any of that sound familiar?Isn't all this just a barrel of fun???By the way, what kind of Specialist handles the Lichen? I might as well find out, so I can tackle this new one..
Carry on,jatonlouise!Bettyin sickness, wishing in health

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@bruizersmom
I can never keep it straight - just know 1 word is Lichen and the other Planus. I had a devil of a time finding out ehat it was. Silly me ! It's a skin problem, so I thought a dermitologust would have a clue. Nope! It's in my mouyh so I though my dentist might know what it was. Nope! So I went back to the dermitologist and the other dr. In the practice overheard our conversation and referred me to a practice specializing in disorders of the mucous nembranes. So that's where I got the diagnosis. The treatment is a salve with cortizone specially firmulated for inside the mouth.
Volon A haftsalbe
1mg/g
Triamcinolonacetonid
At least that's what it's called in Germany. The clinic I went to said I should come in to have it checked every 6 months. About 5% of the people who have this get mouth cancer so I should come back in 6 mos. But shortly thereafter I trued to crossed the street at a place I should have kniwn better than to try, and I underestimated how fast a car was coming while simultaneousely overestimated how fast I could walk and tried to cross the street but fell in front of a car -- scaring a poor young man to death--and ended up shattering breaking my arm which is niw keot together with a tutanium rod. This whole littke episode was probably related to my PD (which had not yet been diagnosed). Hence, I didn't keep my folliw-up with the mucus membrane clinic and by the timr my arm healed, I had started my magical mystery tour down the yellow brick road to PD diagnosis. -- a 2-3 year diversion. But my primary care gives me my prescrption for the cortizone salve. I eventually need to get it checked again to make sure I haven't welcomed cancer on my list of maladies. Jimmy the Greek in Las Vegas may be offering odds on thus so perhaos I ought to touch base with him . Hmmmm I'm seeing an imspiration for a board game for PD folks. We could call it "Mr. PD meets zMs. Co-morbidities". With the goal being to have your co- morbidities rescue you from Mr. PD. so you can hop onpathyto the Black Train before Stage 5 visits you.
BTW, if zlMs. Peripheral Myopathy has been to vidit she failed to leave a calling card thus far. O, I forgot about my sleep apnea. Wrestling with the CPAP with my shattered arm and my journey to the magical PDLandia became a tad much, and when I got a notice that the asbestos insulation in my CPAP was connected to cancer, I figured I' had enough justification for canceling my lease on the CPAP.
Don't know what specialty treats Planus Lichen Planus ( and it might be different in the US than it is in Germany. Options could be : 1) Immunologist or allergy doctor because it is an autoimmune disease: 2. dermatologist because it's skin;; 3. dentist because it's in your .mouth; 4 oncoligist becsuse it's a precursor to cancer;5. ENT because it's in the same neighborhood with your mouth.

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Profile picture for janna2 @janna2

@jatonlouise Oh my Queen of satire; I just wanted to say how much I appreciate your posts! You are such an inspiration as I enter my “but wait-there’s more” phase. I aspire to keep myself, my doctors and my friends laughing. Thank you for being the light that shows through the cracks.

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@janna2 , oh yes. That she is (jatonlouiese, of course). I try to put some fun into this medical madness, but I continuously fail!

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Profile picture for jatonlouise @jatonlouise

I am 2 years older than dirt (80) and I have more comorbidities that you can shake a stick at; most of them are just the things you get when you don't die young and I take lots of meds for them: HIGH blood Pressure; LOW thyroid; HIGH Choloesterol; GERD; Planus Lichen (an auto-immune disorder where your immune system has a strong case of paranoia and has gotten to believe that the mucus membranes in your mouth are a clear and present danger not only to me but to everybody on the planet and as well,) endangering my abilty to engage in my 2 most favorite activities - eating and talking . I may as well also reveal the shame of a fungal infection on my big toe on my left foot, which I'be been unable to shake for 3 years; none of the other toes have demonstrated the least interest in hosting the fungall infection (at least not so far. So I'm hoping that I can make it through this valley of the shadow of very mild cases of mild maladies before they enter a stage where they become interested in joining the big toe in its adventures. . I also have entertained a number of Mini Strokes so take a baby aspirin ever day. I am rewarded in my diligence in taking my baby aspirin by having a series of bruises that seem to take up permanent residence in the places where my cannula for my l-dopa pump gives me a steady stream of l-dopa every day.. The double vision that I had as a child but grew out of has returned to the homestead and entertains me with almost more information than I could process before I had PD. I also have osteopoenia for which I took meds for 6 years, until they realized that the med was actually making it worse. And I have hearing aides. All of my maladies are at the low end and are fuly controlled with the lowest doses of each med. except for my PD which is Advanced stage, and demands copious doses of pills in addition to the l dopa delivered by my pump .And all these other non-PD maladies are age-appropriate and controlled very, very well by the lower doses of drugs. And lest I forget, I also entertain the maladay that all PD patients are erquird to have - chronic constipation, which I can control only by daking approsimately 1 pound of fiber every day and consuming lots and lots of prunes or kiwi fruit. I think this is the full list of al my complaints and I hope not to entertain any more

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@jatonlouise Oh my Queen of satire; I just wanted to say how much I appreciate your posts! You are such an inspiration as I enter my “but wait-there’s more” phase. I aspire to keep myself, my doctors and my friends laughing. Thank you for being the light that shows through the cracks.

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Profile picture for bruizersmom @bruizersmom

@barryl , LOL...my dog does that for me; he sleeps pressed against my back!
LOL But thanks for the info. I might just try it!

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@bruizersmom - I'll send you a sleep noodle if you'll send me that dog!

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Profile picture for barryl @barryl

@bruizersmom - It's hard for me to forget about Sleep Apnea, but.... I learned a trick from my dentist to almost get my obstructive events to ZERO every night. It's called "sleep noodle".
They are available on Amazon. You wear it on your back so you can stay on your side. If you try to roll on your back it prevents that. It works for me!! Good luck. Barry

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@barryl , LOL...my dog does that for me; he sleeps pressed against my back!
LOL But thanks for the info. I might just try it!

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Profile picture for foundryrat743 @foundryrat743

In addition to being diagnosed with Parkinson’s Disease 8 years ago, I had polio, as a child, and now have post-polio syndrome. I have to deal with atrial fibrillation, severe osteoarthritis, fatty liver disease, hypertension, epilepsy, severe migraines, peripheral neuropathy, anaemia, supraventricular tachycardia, and who knows what else! I’m at the point now, that I am reluctant to go to my annual physical, for fear the Dr. may find something else!

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@foundryrat743, we have a few things in common: fibrillation, osteo arth., migraines, epilepsy, peri.neuropathy, tachycardia (fixed it with a ventricular ablation. very easy, very fast).
Your What Else is intriguing..My list goes on: Raynaud"s, rosacea, major vision problems like blurry eyesight, drooping eyelid, depth perception probs, chronic back pain with spine abnormalities ...yes, about a zillion other things, constipation/diahrrea, you know, the typical batch of 'non-motor symptoms' that you have to go to scores of specialists for treatment.
I just keep finding people who have the same bunch of shared ailments. Wondering if there's some connection to the PD.
Some time, visit Mayo" other groups, like neuropathy, migraine, pain...you'll see stuff that mmakes you yell Me too!! and waant to tell them it's not what-ever, it's PD. Just saying...

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In addition to being diagnosed with Parkinson’s Disease 8 years ago, I had polio, as a child, and now have post-polio syndrome. I have to deal with atrial fibrillation, severe osteoarthritis, fatty liver disease, hypertension, epilepsy, severe migraines, peripheral neuropathy, anaemia, supraventricular tachycardia, and who knows what else! I’m at the point now, that I am reluctant to go to my annual physical, for fear the Dr. may find something else!

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Profile picture for bruizersmom @bruizersmom

@barryl Oh! Thanks for the reminder. I forgot to add that to my ever-expanding disease list!
Yes, I too have sleep apnea.
(didn't really want a reminder!)

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@bruizersmom - It's hard for me to forget about Sleep Apnea, but.... I learned a trick from my dentist to almost get my obstructive events to ZERO every night. It's called "sleep noodle".
They are available on Amazon. You wear it on your back so you can stay on your side. If you try to roll on your back it prevents that. It works for me!! Good luck. Barry

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Profile picture for jatonlouise @jatonlouise

I am 2 years older than dirt (80) and I have more comorbidities that you can shake a stick at; most of them are just the things you get when you don't die young and I take lots of meds for them: HIGH blood Pressure; LOW thyroid; HIGH Choloesterol; GERD; Planus Lichen (an auto-immune disorder where your immune system has a strong case of paranoia and has gotten to believe that the mucus membranes in your mouth are a clear and present danger not only to me but to everybody on the planet and as well,) endangering my abilty to engage in my 2 most favorite activities - eating and talking . I may as well also reveal the shame of a fungal infection on my big toe on my left foot, which I'be been unable to shake for 3 years; none of the other toes have demonstrated the least interest in hosting the fungall infection (at least not so far. So I'm hoping that I can make it through this valley of the shadow of very mild cases of mild maladies before they enter a stage where they become interested in joining the big toe in its adventures. . I also have entertained a number of Mini Strokes so take a baby aspirin ever day. I am rewarded in my diligence in taking my baby aspirin by having a series of bruises that seem to take up permanent residence in the places where my cannula for my l-dopa pump gives me a steady stream of l-dopa every day.. The double vision that I had as a child but grew out of has returned to the homestead and entertains me with almost more information than I could process before I had PD. I also have osteopoenia for which I took meds for 6 years, until they realized that the med was actually making it worse. And I have hearing aides. All of my maladies are at the low end and are fuly controlled with the lowest doses of each med. except for my PD which is Advanced stage, and demands copious doses of pills in addition to the l dopa delivered by my pump .And all these other non-PD maladies are age-appropriate and controlled very, very well by the lower doses of drugs. And lest I forget, I also entertain the maladay that all PD patients are erquird to have - chronic constipation, which I can control only by daking approsimately 1 pound of fiber every day and consuming lots and lots of prunes or kiwi fruit. I think this is the full list of al my complaints and I hope not to entertain any more

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@jatonlouise , frats. I forgot all about the sleep apnea, the sleep deprivation, the insomnia attacks, the Ear Worm (look that one up. Too lazy to repeat), the hallucinations..but these all seem to come up in non-motor PD desciptions as Symptoms.

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