1. < Heart & Blood Health

Does anyone have macrocytic anemia?

Posted by katya12 (Greg) @katya12, Dec 25, 2023

I have been diagnosed with macrocytic anemia not caused by a vitamin B12 or Folate deficiency. My RBC and platelets are low, and my MCH and MPV are high. I have had many tests, and my doctor still doesn't know what is causing the macrocytic anemia.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

Mentor
Lori, Volunteer Mentor | @loribmt | Dec 28, 2023

Hi @katya12. There are a number of members in Connect who also have been diagnosed with Macrocytic Anemia in quite a few different discussions so I’m not sure what the conditions are behind their cause for having the blood disorder.
If you’d like to read through some of the conversations type Macrocytic Anemia in the search bar and you see the threads listed.

I’m also posting a helpful link to information about Macrocytic anemia:

https://www.healthline.com/health/macrocytic-anemia

You mentioned having several tests run. Did these include a liver and/or thyroid panel? Are you on any treatments for the anemia?

REPLY
1 reply
katya12 (Greg) | @katya12 | Dec 28, 2023
In reply to @loribmt "Hi @katya12. There are a number of members in Connect who also have been diagnosed with..." + (show)
@loribmt

Hi @katya12. There are a number of members in Connect who also have been diagnosed with Macrocytic Anemia in quite a few different discussions so I’m not sure what the conditions are behind their cause for having the blood disorder.
If you’d like to read through some of the conversations type Macrocytic Anemia in the search bar and you see the threads listed.

I’m also posting a helpful link to information about Macrocytic anemia:

https://www.healthline.com/health/macrocytic-anemia

You mentioned having several tests run. Did these include a liver and/or thyroid panel? Are you on any treatments for the anemia?

Jump to this post

Thank you, Lori, for the information. I will look at the threads and the link you provided. My doctor has run a myriad of tests, and she still cannot determine the cause of my macrocytic anemia.

REPLY
1 reply
Mentor
Lori, Volunteer Mentor | @loribmt | Dec 28, 2023
In reply to @katya12 "Thank you, Lori, for the information. I will look at the threads and the link you..." + (show)
@katya12

Thank you, Lori, for the information. I will look at the threads and the link you provided. My doctor has run a myriad of tests, and she still cannot determine the cause of my macrocytic anemia.

Jump to this post

As I found out from my own medical odyssey, our bodies/blood are incredibly complex. Finding answers to some of our health issues can be equally complex. Hopefully you find an answer soon. Are you working with a hematologist?

REPLY
ckscoville | @ckscoville | Jan 1 7:31am

I am in the same situation as Greg above. No B12 or Folate deficiency, and same blood panel results. A hematologist at Mayo ordered a bone marrow biopsy, but that too revealed no reason for the anemia. So I'm left without any apparent answers and considerable fatigue.

REPLY
Please sign in or register to post a reply.