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Does anyone have HHT? Hereditary Hemorrhagic Telangiectasia

Posted by amartin945 @amartin945, Feb 9, 2024

I know HHT is rare and currently there is no cure. Does anyone else suffer from HHT (Hereditary Hemorrhagic Telangiectasia)? If so, what medical treatment are you having?

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pendutchgal | @pendutchgal | 2 days ago
In reply to @colleenyoung "Hi @pendutchgal, welcome. I'm bringing in fellow HHT-ers like @heathshan @olivine @amartin945 to share their experiences..." + (show)
@colleenyoung

Hi @pendutchgal, welcome. I'm bringing in fellow HHT-ers like @heathshan @olivine @amartin945 to share their experiences too.

@pendutchgal, how did you discover the GI bleeds? Are you experiencing anemia? What treatment has been suggested for you?

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I use Afrin nasal spray or its equivalent to stop nosebleeds. A saturated
cotton ball inserted in nostril or nostrils.

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