Does anyone have chronic diarrhea?

Posted by hroberts257 @hroberts257, Dec 20, 2024

My husband was diagnosed with acinar cell pancreatic cancer of the head Oct 11 2024 he started with diarrhea prior to diagnosis May 2024 with c diff since then to loose stools have not gone away Tried creon Zenpep now protonix with viokase
Makes no difference they tested him for sibo and he was positive waiting for insurance to approve expensive antibiotic Takes Imodium lomotil and tincture of opium day 4-8 has 11-12 liquid stools talked to gastro today and he said 100 percent his pancreatic cancer but why isn’t enzymes working tried increasing dose does nothing Just wondering if others have this problem thanks

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bobcinem | @bobcinem | Feb 2 10:55am

what are the causes of chronic diarrhea ? Years ago I was out on a FODMAP diet. Last fall I had ecoli which seemed to be the cause. It has returned with a venengce, and I am misterable. Any ideas?

msh466 | @msh466 | Feb 2 12:28pm

In reply to @bobcinem "what are the causes of chronic diarrhea ? Years ago I was out on a FODMAP..." + (show)

Testing for Cdiff. Celiac disease. Irritable bowel syndrome. Food allergies. When’s the last time you had a colonoscopy? Polyps. The list is long with diarrhea. I take tums or antacids. Imodium helps. Too much coffee also.

koneil | @koneil | Feb 2 3:25pm

In reply to @bobcinem "what are the causes of chronic diarrhea ? Years ago I was out on a FODMAP..." + (show)

Hello, I have the same chronic dirreah. It's been a problem for about five years. I've had two colonoscopys recently. Nothing the doctor could find that caused my symptoms. Now they call it IBS D. Currently they are giving me dicyclomine, diphenox/atrop, promethazine and loperamide hydrochloride for my symptoms . My doctor ordered every diagnostic procedure to determine the cause of my chronic diarrhea.
He could not locate the cause.
I'm sure I'm not alone in this
problem.
My doctor wants to do a second colonoscopy to see if he missed anything. My insurance will not cover a second colonoscopy.
This issue has made me a hermit. I do not go out of my house to anything but doctor appointments . Anyone have insights to this?

msh466 | @msh466 | Feb 2 4:34pm

In reply to @koneil "Hello, I have the same chronic dirreah. It's been a problem for about five years. I've..." + (show)

So I have dealt with this but I found the trigger. I have celiac disease plus I am lactose intolerant. So no wheat no dairy I am good to go. Food logs are helpful for some. What you eat when you eat. IBS is a phrase that has many meanings but little insight to why. From caffeine to stress. I have always looked at diarrhea as a way your body is projecting something out ASAP. You don’t describe cramps or stomach aches. Nausea is another biggie. I used to schedule all my appointments in the morning. Did not eat or drink till I got home. Then eat. Sorry your going thru this.

bobcinem | @bobcinem | Feb 2 5:59pm

In reply to @bobcinem "what are the causes of chronic diarrhea ? Years ago I was out on a FODMAP..." + (show)

Thank you so much for responding! I love your perspective! Yes, thank goodness, no cramps or nausea... just an almost immediate warning after I eat...RUN!!!

bobcinem | @bobcinem | Feb 2 6:04pm

In reply to @koneil "Hello, I have the same chronic dirreah. It's been a problem for about five years. I've..." + (show)

Thank you for replying! Did he suggest you follow a FODMAP plan?

bobcinem | @bobcinem | Feb 2 6:06pm

In reply to @msh466 "Testing for Cdiff. Celiac disease. Irritable bowel syndrome. Food allergies. When’s the last time you had..." + (show)

I had a colonoscopy about 4 years ago...this occurred during Covid... I realized that we were eating beans all the time!I believe that was a BIG factor!

koneil | @koneil | Feb 2 6:08pm

In reply to @msh466 "So I have dealt with this but I found the trigger. I have celiac disease plus..." + (show)

Thank you for the comment. I went through all the tests and nothing seemed to match. My diet is pretty bland. Rice, baked potatoes and bread. Water too. My diet is definitely restricted due to my chronic diarrhea. My gastro said he has a couple of additional tests for me including the colonoscopy.
The insurance will limit the tests. Thanks again for the comment but I've tried it already.

bobcinem | @bobcinem | Feb 2 7:07pm

In reply to @koneil "Thank you for the comment. I went through all the tests and nothing seemed to match...." + (show)

Thank you for responding. I am so sorry for what you have been, and still are, going through!
What a dirty trick! (as I would say as a little kid!)

msh466 | @msh466 | Feb 3 8:50am

In reply to @koneil "Thank you for the comment. I went through all the tests and nothing seemed to match...." + (show)

Sorry drawing up blanks for you. Tests for Cdiff. Stool cultures. Ova and parasitic infections are the usual lab tests. Then more invasive procedures like endoscopy and colonoscopy. Testing for celiac disease and food allergies thru blood work. But with no nausea or cramping makes for a difficult prognosis. But a competent GI doctor will eventually find the cause. Good luck.

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