Does anyone have any questions about papillary thyroid cancer?

Posted by lindaadele @lindaadele, Aug 30, 2025

I am a 25 year survivor of papillary thyroid cancer and have been volunteering for many years answering many questions from people who have papillary thyroid cancer and have questions about it. I would be happy to answer any questions from people who have concerns about thyroid cancer.

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

ransom2026 | @ransom2026 | Jan 9 9:09pm

Does anyone do complimentary treatments like vitamin c iv? I have non reactive papillary cancer.

djmlex | @djmlex | Jan 5 1:36pm

In reply to @colleenyoung "@djmlex, we are all so different and have individual responses to drugs. Thanks for posting. When..." + (show)

@colleenyoung Had right side removed 2 months ago - TC PTC with BRAF and TERT mutations. Doing well and will have the other side removed next month.

Colleen Young, Connect Director | @colleenyoung | Jan 5 12:49pm

In reply to @djmlex "@lindaadele I take Armour thyroid and one of the misconceptions is that it is not consistent..." + (show)

@djmlex, we are all so different and have individual responses to drugs. Thanks for posting. When were you diagnosed with thyroid cancer? How are you doing now?

lindaadele | @lindaadele | Jan 2 8:27am

In reply to @tessma "Hi, I am 22 and just had hemi done. Had left lobe and isthmus removed bc..." + (show)

@tessma if it were me and I was worried I would want to get a second opinion from a doctor that’s very familiar with thyroid cancer it can’t hurt. Good luck to you going forward!!!

tessma | @tessma | Jan 1 5:18pm

Hi, I am 22 and just had hemi done. Had left lobe and isthmus removed bc of two nodules classic papillary type. Clear margins no angio invasion. But left worried because there was lymphatic invasion. Thoughts? They are going to wait and watch it.

lindaadele | @lindaadele | Dec 22, 2025

In reply to @barbaradalton "@sophias Yes - setting up an appointment with UofChicago head of endocrine surgery that can see..." + (show)

@barbaradalton wow I am so happy that you were able to set up the appointment in January!!! you are definitely on the right road right now and I wish you the very very very best going forward!!! wishing you a very happy holiday season and a very happy new year!!!

barbaradalton | @barbaradalton | Dec 22, 2025

In reply to @sophias "Hi, Have you thought about contacting a different hospital or practice to see if their senior..." + (show)

@sophias Yes - setting up an appointment with UofChicago head of endocrine surgery that can see us in January.

lindaadele | @lindaadele | Dec 22, 2025

In reply to @barbaradalton "Yes! My husband has a 1.4 cm papillary carcinoma. He was diagnosed at Northwestern and it..." + (show)

@barbaradalton if it were me I would ask the endocrinologist that I’m going to for his opinion about when the surgery should be and arecommendation for a good surgeon who knows exactly what he’s doing with thyroid cancer!!! The more information that you have the better off you will be!!!2 when you’re having surgery for thyroid cancer you need a surgeon who really does a lot of this type of surgery and knows exactly what he’s doing I don’t like the idea of a junior surgeon!!! my very best wishes to you going forward and have a very happy holiday!!!

sophias | @sophias | Dec 22, 2025

Hi, Have you thought about contacting a different hospital or practice to see if their senior surgeon has an earlier appointment available? I would ask friends and family if they recommend a surgeon and then do your own research to see if it is a surgeon you would feel comfortable with.
I can definitely see your concern having the complication with your surgery.
I actually saw five different surgeons before making my decision.

barbaradalton | @barbaradalton | Dec 22, 2025

Yes! My husband has a 1.4 cm papillary carcinoma. He was diagnosed at Northwestern and it is a 6 month wait for a presurgical consult in order to book the senior surgeon. We could go with a more junior surgeon but he is 72, has heart issues and I had same surgery with complications (nicked vocal cord) so we feel the best option is to wait. The plan is to do a 3 month follow up ultrasound to see if there is any growth that is concerning. Is this a smart plan or should we opt for an earlier surgery with the more junior surgeon? Thanks!

Please sign in or register to post a reply.