Does anyone have any information about Vasculitis GPA?

Posted by cartersgirl2 @cartersgirl2, Feb 20 6:28am

I have been through a year of torment with pneumonia’s and lung infections and finally lost my left upper lobe. I probably was hospitalized 13 times during that year and was so sick. I could barely get from my chair to the bed until after they took the lung out. I am doing better now, but recently they’ve diagnosed me with vasculitis GPA. I’ve been on a strong dose of steroids, depress my immune system and they’re going to try me on an auto immune infusion monthly. Has anyone else had this and you have any insights.

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@cartersgirl2
You can join the VPPRN at this link - https://www.vpprn.org/webapp/Views/Join. Once you join, you will be notified about any research projects that you qualify for you. Also, they have online presentations sometimes about new treatments, research, and other information about vascular diseases. You will be notified about those presentations.

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@jeff97 Thank you, got it !

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