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devineone
@devineone

Posts: 24
Joined: Aug 22, 2018

Does anyone have a timeline on when the treatments start working?

Posted by @devineone, Sat, Aug 25 6:50am

Being a dialysis patient his fluid build up is really a problem. He has had 3 treatments so far .

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@devineone Good morning to you. Have his cardiac Dr, oncology Dr, and nephrologist had a conference together yet, to make sure all are on the right protocol? That might be a place to start….
Ginger

@gingerw

@devineone Good morning to you. Have his cardiac Dr, oncology Dr, and nephrologist had a conference together yet, to make sure all are on the right protocol? That might be a place to start….
Ginger

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Yes they all concur at this time, we will have a meeting with Oncologist on Sept 6 which will be after 4or5 treatments. Seems none of the docs have dealt with ESRD and ALAmy at the same time, as it seems to be rare. His kidney failure was not due to AMY,

@gingerw

@devineone Good morning to you. Have his cardiac Dr, oncology Dr, and nephrologist had a conference together yet, to make sure all are on the right protocol? That might be a place to start….
Ginger

Jump to this post

@devineone Bet 6 Sept can't come soon enough for you. Please let us know what happens, and come back to vent or discuss as you need to.
Ginger

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