Does anyone find that a type of shoe helps your foot neuropathy?

Posted by lorirenee1 @lorirenee1, Mar 25, 2019

I am on a constant quest for shoes that don't kill my feet due to the neuropathy. I find that Spencos and Wolky shoes seem the best. Are there any other suggestions? Shoes can be just crippling for me. Horrid.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@mcden

My sister gave me two pairs. She bought them in the States.
I'll ask her where she got them. Maybe I can track down the store and ask them for the manufacturers' name. I went over my sandals with a magnifying glass but couldn't see a brand name. I saw a similar pair here in Toronto but they had no ridges or arch support. I'll do my best finding out where to buy the sandals. I wish I could have been of more help. Best of luck.
P.S. I agree with you - I also think the ridges stretch the toes into a more normal position.

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Thank you so much!!!

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@pghspinupgal

I Am Soo Desperate For sum feedback or somebody going thru my same issue. A few years back I went to my doctor complaining that my toes were numb. It was ignored when I go back for routine check up. I complain that my whole foot was numb. Nothing was done. My leg. Started going numb this past year and now it’s up past my knees, my ability to walk my balance has been bad. They actually gave me a walker because the doctor said he couldn’t in good conscience. Let me leave his office without something to walk with I no longer can do the things that I normally do. My balance is really bad and my feet and legs are numb , I was never properly diagnosed or tested for neuropathy. I was just given the diagnosis. I’m very scared that I’m gonna end up in a wheelchair. Will somebody help me in the right direction to get the proper help and proper care because nothing’s being done I’m 48 years old. I was extremely active up until a year ago and now I barely leave the house because my balance is so bad.

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Welcome @pghspinupgal, Sorry to hear that you haven't been able to find any help for your neuropathy symptoms. Best advice I can offer is to learn as much as you can about your condition and what treatments may help. There are many different discussions in the Neuropathy Support Group that you might want to look through to meet others with similar concerns and symptoms. Here's a list of the discussions in the Neuropathy Support Group - https://connect.mayoclinic.org/group/neuropathy/.

Here are the two best sites that I have found to learn more about neuropathy:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

I'm not sure where you are located but there are many different teaching hospitals across the United States that would be a good choice to seek a diagnosis.

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@pghspinupgal

I Am Soo Desperate For sum feedback or somebody going thru my same issue. A few years back I went to my doctor complaining that my toes were numb. It was ignored when I go back for routine check up. I complain that my whole foot was numb. Nothing was done. My leg. Started going numb this past year and now it’s up past my knees, my ability to walk my balance has been bad. They actually gave me a walker because the doctor said he couldn’t in good conscience. Let me leave his office without something to walk with I no longer can do the things that I normally do. My balance is really bad and my feet and legs are numb , I was never properly diagnosed or tested for neuropathy. I was just given the diagnosis. I’m very scared that I’m gonna end up in a wheelchair. Will somebody help me in the right direction to get the proper help and proper care because nothing’s being done I’m 48 years old. I was extremely active up until a year ago and now I barely leave the house because my balance is so bad.

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Make an appointment with a neurologist. I had the same experience. Physician told me to elevate my feet when it first began. Like you, it is now up to my knees.

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@pghspinupgal

I Am Soo Desperate For sum feedback or somebody going thru my same issue. A few years back I went to my doctor complaining that my toes were numb. It was ignored when I go back for routine check up. I complain that my whole foot was numb. Nothing was done. My leg. Started going numb this past year and now it’s up past my knees, my ability to walk my balance has been bad. They actually gave me a walker because the doctor said he couldn’t in good conscience. Let me leave his office without something to walk with I no longer can do the things that I normally do. My balance is really bad and my feet and legs are numb , I was never properly diagnosed or tested for neuropathy. I was just given the diagnosis. I’m very scared that I’m gonna end up in a wheelchair. Will somebody help me in the right direction to get the proper help and proper care because nothing’s being done I’m 48 years old. I was extremely active up until a year ago and now I barely leave the house because my balance is so bad.

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That's awful, and it makes me wonder about whether you should change doctors. I'm going to make a couple of suggestions and then ask a couple of questions, if that's OK.

Suggestions:
--Take some time to really browse in these neuropathy blogs. You may find useful tips and tricks and insights, but it could take quite a bit of scrolling the first time.
--It sounds like leaving the house is precarious for you right now. I'm not sure what time zone you are in and whether this is practical, but here's an example of an on-line balance class that starts Monday, Jan 6 that's free and run by a live instructor who is very good at being sensitive to people with issues: https://lp.constantcontactpages.com/ev/reg/9pxjh2p.
-- You can also browse here: https://www.foundationforpn.org/

Questions:
-- Have you asked your doctor for a referral to a neurologist who specializes in peripheral neuropathy, and if so, what did they say?
-- Does your insurance require a referral, or can you find a neurologist yourself? If so, do you live near a medical school or teaching hospital, which are good places to start looking for a specialist who accepts your insurance?
-- The path to get find a specific cause for neuropathy is not short; I'm expecting mine to take much of this year. What ideas do you have about how you might go about adapting to your symptoms, or getting whatever help you need, until you are able to turn this around? You found this site, which probably took some work, so you clearly have the ability to cut through to solutions.

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I have had very good luck with barefoot/minimalist shoes. I have used Xero, Lems, Vivobarefoot so far. I also just bought a pair of Hike Footwear shoes a few days ago, and so far so good. There are other brands out there too and more appearing online every day. I mainly wear the barefoot style, always with a wide toe box and zero drop, and in a size at least one size bigger than I measure, and am pretty happy doing most things in those. If I am going for a long walk outside I feel like I need more support, and then I wear a pair of Altra Escalante 4s. They are not "barefoot" but the support padding is light, they are zero drop, and the toe box is nice and wide. Those give me the extra support I feel I need on a longer walk or a walk on a lot of pavement. For a dress shoe I just bought a ballet flat by Whitin, which is barefoot sole, zero drop and wide, and those are working out fine for events where I need to dress up a bit. Good luck hunting and trying shoes. Everybody is different and it is hard to know what will work until you give it a trial wearing. I have spent a lot of time ordering shoes, trying them out, returning and then trying something else. It can be aggravating but after a while I was able to find things that were helpful.

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@johnbishop

Welcome @pghspinupgal, Sorry to hear that you haven't been able to find any help for your neuropathy symptoms. Best advice I can offer is to learn as much as you can about your condition and what treatments may help. There are many different discussions in the Neuropathy Support Group that you might want to look through to meet others with similar concerns and symptoms. Here's a list of the discussions in the Neuropathy Support Group - https://connect.mayoclinic.org/group/neuropathy/.

Here are the two best sites that I have found to learn more about neuropathy:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

I'm not sure where you are located but there are many different teaching hospitals across the United States that would be a good choice to seek a diagnosis.

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Thanks

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@pghspinupgal

I Am Soo Desperate For sum feedback or somebody going thru my same issue. A few years back I went to my doctor complaining that my toes were numb. It was ignored when I go back for routine check up. I complain that my whole foot was numb. Nothing was done. My leg. Started going numb this past year and now it’s up past my knees, my ability to walk my balance has been bad. They actually gave me a walker because the doctor said he couldn’t in good conscience. Let me leave his office without something to walk with I no longer can do the things that I normally do. My balance is really bad and my feet and legs are numb , I was never properly diagnosed or tested for neuropathy. I was just given the diagnosis. I’m very scared that I’m gonna end up in a wheelchair. Will somebody help me in the right direction to get the proper help and proper care because nothing’s being done I’m 48 years old. I was extremely active up until a year ago and now I barely leave the house because my balance is so bad.

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@pghspinupgal
Sounds exactly like me.
I'm 59 always been self sufficient and do anything I put my mind too .I started walking to the right about 18 month's ago and started feeling unbalanced and my feet and legs would feel like concrete and numb .
I shunned it off and then at work where I stand on my feet 10 hours a day in a bakery I couldn't keep my balance so I went next door to my dr all she done was an ekg and gave me meclizine for dizziness ugh I'm not Dizzy. So my journey begins heart workup and everything good for my age but I do have syncope which I take meds for.
Cat scan everything good just a little stenosis in neck.
Neurologist done blood work said it was good still iffy on that .he done a .Eng nerve test and said PN but no treatment just sent me to balance dr .and physical therapy because they say I have vestibular Hypofunction
Unbalanced walking
I have sent all my paper work to mayo clinic waiting on an appointment and Praying for more answers 🙏 🙌
Hopefully this will help you. Ready for Something....Good

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@arflmi33

I have had very good luck with barefoot/minimalist shoes. I have used Xero, Lems, Vivobarefoot so far. I also just bought a pair of Hike Footwear shoes a few days ago, and so far so good. There are other brands out there too and more appearing online every day. I mainly wear the barefoot style, always with a wide toe box and zero drop, and in a size at least one size bigger than I measure, and am pretty happy doing most things in those. If I am going for a long walk outside I feel like I need more support, and then I wear a pair of Altra Escalante 4s. They are not "barefoot" but the support padding is light, they are zero drop, and the toe box is nice and wide. Those give me the extra support I feel I need on a longer walk or a walk on a lot of pavement. For a dress shoe I just bought a ballet flat by Whitin, which is barefoot sole, zero drop and wide, and those are working out fine for events where I need to dress up a bit. Good luck hunting and trying shoes. Everybody is different and it is hard to know what will work until you give it a trial wearing. I have spent a lot of time ordering shoes, trying them out, returning and then trying something else. It can be aggravating but after a while I was able to find things that were helpful.

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Your post was very helpful -- bookmarked all the websites, and particularly thrilled to find a dress shoe. Just started wearing a Vivobarefoot that has excellent traction for winter wear, and (a) boy, are barefoot shoes something different, (b) yes, I'm feeling the ground better, and (c) my feet are a lot colder, so good thing there is room for two pairs of socks (my toe socks plus a regular pair).

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@arflmi33

I have had very good luck with barefoot/minimalist shoes. I have used Xero, Lems, Vivobarefoot so far. I also just bought a pair of Hike Footwear shoes a few days ago, and so far so good. There are other brands out there too and more appearing online every day. I mainly wear the barefoot style, always with a wide toe box and zero drop, and in a size at least one size bigger than I measure, and am pretty happy doing most things in those. If I am going for a long walk outside I feel like I need more support, and then I wear a pair of Altra Escalante 4s. They are not "barefoot" but the support padding is light, they are zero drop, and the toe box is nice and wide. Those give me the extra support I feel I need on a longer walk or a walk on a lot of pavement. For a dress shoe I just bought a ballet flat by Whitin, which is barefoot sole, zero drop and wide, and those are working out fine for events where I need to dress up a bit. Good luck hunting and trying shoes. Everybody is different and it is hard to know what will work until you give it a trial wearing. I have spent a lot of time ordering shoes, trying them out, returning and then trying something else. It can be aggravating but after a while I was able to find things that were helpful.

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I am with you on the barefoot shoes, I feel they help and if I travel or on rough terrain - I wear Keen's sandals

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@pghspinupgal

I Am Soo Desperate For sum feedback or somebody going thru my same issue. A few years back I went to my doctor complaining that my toes were numb. It was ignored when I go back for routine check up. I complain that my whole foot was numb. Nothing was done. My leg. Started going numb this past year and now it’s up past my knees, my ability to walk my balance has been bad. They actually gave me a walker because the doctor said he couldn’t in good conscience. Let me leave his office without something to walk with I no longer can do the things that I normally do. My balance is really bad and my feet and legs are numb , I was never properly diagnosed or tested for neuropathy. I was just given the diagnosis. I’m very scared that I’m gonna end up in a wheelchair. Will somebody help me in the right direction to get the proper help and proper care because nothing’s being done I’m 48 years old. I was extremely active up until a year ago and now I barely leave the house because my balance is so bad.

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For starters, you should have a test where they pin prick your feet to isolate where in the spine this issue is originating. Something like this can be so serious that paralysis can occur. I would definitely pursue medical specialist.

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