Does anyone else have mycobacterium simiae?

Posted by karen10225 @karen10225, May 30 5:46pm

Finding info on simiae is very difficult. I’ve never come across anyone with this NTM and sometimes feel like I am the only one with it.

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Sue, Volunteer Mentor | @sueinmn | May 30 7:48pm

@karen10225 - You do indeed have a very rare strain, especially if you are in the US. I gave you a link to some information in another post I sent you, just in case you don't find someone here who knows about it.

It sounds like it is one of the variants that are not treated unless you have symptoms like lung damage, fever, fatigue and weight loss - does that describe you?