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Does anyone else have Long QT Syndrome?

Posted by meredithes @meredithes, 1 day ago

I have a heart rhythm issue called Long QT Syndrome. I don’t know anyone else with this condition and just want to put out some feelers on Mayo Connect to see if there are any others dealing with this disorder. I’m part of a research study at the University of Rochester in New York that is researching LQTS and will hopefully help discover ways to make this condition more manageable in the future. So, where are my fellow LQTSers at?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

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smazz6 | @smazz6 | 54 minutes ago

Hello! I also have Long QT Syndrome. I was diagnosed in 2017 and had a defibrillator implanted.
Feel free to ask me anything, I am happy to help a fellow Long QT Syndrome heart buddy. ❤️

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