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Doe anyone with Myelofibrosis suffer musscle spasm?
At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at night in either leg. Many times only in my ankles other times in my calves and thighs. I have to get up and walk around until they go away, sometimes they are so painful I can't walk and break out in a sweat, nausea. Very disruptive of my sleep. I am on Jakifi 10mg 2Xs a day. My Doc. says to drink water melon juice or tonic water. I've tried both.
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Hi there, I have post ET MF and the muscle spasms are awful. I get them at night and cannot get out of the bed to stand the calf and leg is so tight. I have tried lots of things, eat bananas take magnesium supplements. The thing that helps when I get them is to have a bottle of the magnesium oil spray beside the bed as that seems to help release them. As a result of spasms I have had nerve pain in my feet from the tendinopathy I also get indirectly as a result. If you cannot get the magnesium oil there is also a gel which is good for the same thing..
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1 ReactionHello friends! I have been on JAKAFI for longer than a year
I get terrible leg cramps during sleep ! Sometimes it hurts for several days! If I had to run ! I could not ! My hem/onc did not inform me that it could be from JAKAFI OR MF 🥵my husband is ordering me the oil from AMAZON NOW !! I will let you all know how it helps ! $20 for 12 once’s ! Good luck to all of you ! I empathize and truly hope that all of you continue to battle this awful illness! Anna
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1 ReactionI have myelofibrosis and have been on 10 mg Jakafi for several years. I have found that drinking
LiquidIV helps the night spasms
They are awful.
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1 ReactionI will try the magnesium oil spray. Thanks