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Doctor visit schedules 3 months, 6 months, 1 year or other and why

Posted by blm1007blm1007 @blm1007blm1007, 1 day ago

Considering your degree of infection, Bronchiectasis and test results involving the following tests 1. sputum testing, 2. X Ray,
3. C Scans, 4. PFT (Pulmonary Function Tests) 5. blood work .....how often are you being asked to do follow up visits to see the pulmonologist, and/or as well, scheduled for one or all of the 1-5 items due to either your infection status or lung status related to Bronchiectasis?
I understand there are differences in doctor preferences or erring on the side of caution, however, I am curious what is being asked of others and done for follow up visits and testing due to infection and lung status.
My status etc.
Last X Ray 2022, which was prior to my BE diagnosis.
C Scan 9 months ago.
Blood work and PFT all O.K. 3 months ago.
No cavities, abscess per last C Scan.
No exacerbation, feel well, no fatigue, no shortness of breath.
I have a low count of MAI.
Barbara

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pacathy | @pacathy | 19 hours ago

I see pulmonologist every 6 months now, but saw him every three for a few times at beginning. Note:I'd been to Mayo and was getting stable before I got into Penn. I get a PFT before each visit. I had 2-3 CT's at 12 month intervals, but it's been 18 months since last. PFT's are good and I don't expect another soon. I usually have labs at other MD's and take pertinent ones. I have a couple sputum cups and a standing order for culture, but rarely get anything. My bronchoscopy culture for MAC a couple years ago was negative to the surprise and delight of all of us, so am just dealing with BE. : )

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blm1007blm1007 | @blm1007blm1007 | 16 hours ago
In reply to @pacathy "I see pulmonologist every 6 months now, but saw him every three for a few times..." + (show)
@pacathy

I see pulmonologist every 6 months now, but saw him every three for a few times at beginning. Note:I'd been to Mayo and was getting stable before I got into Penn. I get a PFT before each visit. I had 2-3 CT's at 12 month intervals, but it's been 18 months since last. PFT's are good and I don't expect another soon. I usually have labs at other MD's and take pertinent ones. I have a couple sputum cups and a standing order for culture, but rarely get anything. My bronchoscopy culture for MAC a couple years ago was negative to the surprise and delight of all of us, so am just dealing with BE. : )

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Thanks.
One more question.
Did you start out with an infection and cleared it and why you were getting stable before going to Penn? Did getting stable mean you took the antibiotics? I can't remember if you have posted about that in another thread.
Your journey sounds like all has/is working for you. Nice to hear that.
Barbara

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