Doctor visit schedules 3 months, 6 months, 1 year or other and why

Posted by blm1007blm1007 @blm1007blm1007, Jul 18 11:24am

Considering your degree of infection, Bronchiectasis and test results involving the following tests 1. sputum testing, 2. X Ray,
3. C Scans, 4. PFT (Pulmonary Function Tests) 5. blood work .....how often are you being asked to do follow up visits to see the pulmonologist, and/or as well, scheduled for one or all of the 1-5 items due to either your infection status or lung status related to Bronchiectasis?
I understand there are differences in doctor preferences or erring on the side of caution, however, I am curious what is being asked of others and done for follow up visits and testing due to infection and lung status.
My status etc.
Last X Ray 2022, which was prior to my BE diagnosis.
C Scan 9 months ago.
Blood work and PFT all O.K. 3 months ago.
No cavities, abscess per last C Scan.
No exacerbation, feel well, no fatigue, no shortness of breath.
I have a low count of MAI.
Barbara

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I see pulmonologist every 6 months now, but saw him every three for a few times at beginning. Note:I'd been to Mayo and was getting stable before I got into Penn. I get a PFT before each visit. I had 2-3 CT's at 12 month intervals, but it's been 18 months since last. PFT's are good and I don't expect another soon. I usually have labs at other MD's and take pertinent ones. I have a couple sputum cups and a standing order for culture, but rarely get anything. My bronchoscopy culture for MAC a couple years ago was negative to the surprise and delight of all of us, so am just dealing with BE. : )

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Profile picture for pacathy @pacathy

I see pulmonologist every 6 months now, but saw him every three for a few times at beginning. Note:I'd been to Mayo and was getting stable before I got into Penn. I get a PFT before each visit. I had 2-3 CT's at 12 month intervals, but it's been 18 months since last. PFT's are good and I don't expect another soon. I usually have labs at other MD's and take pertinent ones. I have a couple sputum cups and a standing order for culture, but rarely get anything. My bronchoscopy culture for MAC a couple years ago was negative to the surprise and delight of all of us, so am just dealing with BE. : )

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Thanks.
One more question.
Did you start out with an infection and cleared it and why you were getting stable before going to Penn? Did getting stable mean you took the antibiotics? I can't remember if you have posted about that in another thread.
Your journey sounds like all has/is working for you. Nice to hear that.
Barbara

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I'd had coughs for 2-3 years-one a little nagging one and a horrid one that was intermittent bouts. I was in new city that was simply slammed by Covid and it was hard to get care for a more typical illness like sinus infections/bronchitis.
Later, an Urgent Care doc ordered an xray which showed showed a couple nodules confirmed by CT. A f/u a year later was much worse and looked like MAC. I finally started getting help. I lucked into a cancelled appt slot at Mayo a few months later after local pulmonologist had gone on emergency leave. Mayo made the diagnosis (BE; ruled out MAC after cultures negative) and plan. I'd also been found to have mild asthma once cultures were negative, Mayo doc started me on Advair and the little cough went away. Local ENT's got sinus issues under better control. Penn's pulmonary appointments had been several months out, but I kept it and like doc and stayed with them. Local.
The bronch's culture at Mayo didn't grow MAC (to their surprise) and my Penn doc's theories are that it was persistent aspirated sinus drainage (treated aggressively now) or that I'd had MAC and cleared it spontaneously. I've written about it so often, it's pretty old news. : )

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Profile picture for pacathy @pacathy

I'd had coughs for 2-3 years-one a little nagging one and a horrid one that was intermittent bouts. I was in new city that was simply slammed by Covid and it was hard to get care for a more typical illness like sinus infections/bronchitis.
Later, an Urgent Care doc ordered an xray which showed showed a couple nodules confirmed by CT. A f/u a year later was much worse and looked like MAC. I finally started getting help. I lucked into a cancelled appt slot at Mayo a few months later after local pulmonologist had gone on emergency leave. Mayo made the diagnosis (BE; ruled out MAC after cultures negative) and plan. I'd also been found to have mild asthma once cultures were negative, Mayo doc started me on Advair and the little cough went away. Local ENT's got sinus issues under better control. Penn's pulmonary appointments had been several months out, but I kept it and like doc and stayed with them. Local.
The bronch's culture at Mayo didn't grow MAC (to their surprise) and my Penn doc's theories are that it was persistent aspirated sinus drainage (treated aggressively now) or that I'd had MAC and cleared it spontaneously. I've written about it so often, it's pretty old news. : )

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Hi and thank you.
That was a big help for me to have this understanding of your journey and it will probably help others that find there way to this thread or the different threads ....be it this thread or the other threads you have posted to. It might help us to keep our responses in a doc folder to pull up and to use again..because same questions and concerns will probably be asked again in a different way and all responses help, especially for those who are new to it all.

So nice to see your responses and other patient's responses in the threads when the various questions and concerns are asked so that we know we are still involved with keeping ourselves as well as we possibly can.
Barbara

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