Which doctor is responsible for follow up after Ileostomy surgery?

Posted by lauramae3 @lauramae3, Dec 5, 2024

My husband had an emergency Ileostomy on August 7 by an emergency physician. He never had a physician associated with this health problem. My question is, do you have a physician dedicated to monitor the health and well being of the stoma, rashes, vitamin deficiency, loss of weight, appetite, etc.? If so we need to know why type of specialty doctor this would be. Thank you.

Interested in more discussions like this? Go to the Ostomy Support Group.

@lauramae3

Wow, you've been through a lot. Losing weight just adds to the stress. I hope to address this with our Ostomy Clinic and the gastroenterologist. Hope my husband and you find a way out of this problem.

Jump to this post

The Ostomy Clinic didn't have an answer but the home occupational therapist recommended unflavored protein powder which I plan to purchase from Amazon next week. You can put it in anything supposedly and not alter the taste. That should increase the protein and hopefully the weight. Fingers crossed.

REPLY
@colleenyoung

@yvonnek, I hope you saw the helpful replies from @ravna @yvetteh @lauramae3 about seeking a consult with a dietitian specializing in ostomy care.

Have you worked with a dietitian? Have any underlying complications of surgery been ruled out?

Jump to this post

Bill has a referral to a gastroenterologist to address the many issues relating to the surgery but has delayed in until his cancer treatment is underway. The cancer is the main issue at this point.

REPLY
@colleenyoung

@yvonnek, I hope you saw the helpful replies from @ravna @yvetteh @lauramae3 about seeking a consult with a dietitian specializing in ostomy care.

Have you worked with a dietitian? Have any underlying complications of surgery been ruled out?

Jump to this post

Unfortunately, a dietitian cannot help with his lack of appetite. I can prepare a nutritious meal but he can only eat a small portion of it when he says he is full. Going calorie negative one more time. I'm hoping that when his cancer injection is started next week that maybe he will be able to eat more. He is also drinking Boost and having ice cream sundaes to increase his calories. I'll be happy when his weight stops dropping.

REPLY
@lauramae3

The Ostomy Clinic didn't have an answer but the home occupational therapist recommended unflavored protein powder which I plan to purchase from Amazon next week. You can put it in anything supposedly and not alter the taste. That should increase the protein and hopefully the weight. Fingers crossed.

Jump to this post

I don't know which powder was recommended to you, but per my GI dietician I got Beneprotein. I mixed it in stuff like applesauce and smoothies and it did not have any taste.

REPLY
@lauramae3

Unfortunately, a dietitian cannot help with his lack of appetite. I can prepare a nutritious meal but he can only eat a small portion of it when he says he is full. Going calorie negative one more time. I'm hoping that when his cancer injection is started next week that maybe he will be able to eat more. He is also drinking Boost and having ice cream sundaes to increase his calories. I'll be happy when his weight stops dropping.

Jump to this post

I have a similar problem off and on with my husband (who is undergoing chemo). The Jimmy Dean Bacon breakfast bowl is something that he can usually stomach and gives him 400 calories + 26 gm protein.

In trying to stuff calories, cheesecake is something to look at. We got a cheesecake for Christmas that had 640 calories per 1/8 of the cake. Too bad my husband doesn't like cheesecake!

REPLY
@hardingv

I don't know which powder was recommended to you, but per my GI dietician I got Beneprotein. I mixed it in stuff like applesauce and smoothies and it did not have any taste.

Jump to this post

I looked up Beneprotein - I like that it's Whey. I still can't get my hands around how much powder you put it whatever you want to put it in, i.e., how much powder for 25 calories and 6g protein per serving. Any info on that?

REPLY
@hardingv

I have a similar problem off and on with my husband (who is undergoing chemo). The Jimmy Dean Bacon breakfast bowl is something that he can usually stomach and gives him 400 calories + 26 gm protein.

In trying to stuff calories, cheesecake is something to look at. We got a cheesecake for Christmas that had 640 calories per 1/8 of the cake. Too bad my husband doesn't like cheesecake!

Jump to this post

I'll look up the Jimmy Dean breakfast bowl. If it has eggs in it, that's a non-starter as he is allergic to eggs. Go figure. Eggs are a good source of protein. When we go to his Oncologist soon we'll ask him about the lack of appetite and why he prefers soups, liquids for food. I have a nice recipe for Cheesecake and I know he has eaten that before. I'll give it a try. Thanks!!!

REPLY
@lauramae3

I'll look up the Jimmy Dean breakfast bowl. If it has eggs in it, that's a non-starter as he is allergic to eggs. Go figure. Eggs are a good source of protein. When we go to his Oncologist soon we'll ask him about the lack of appetite and why he prefers soups, liquids for food. I have a nice recipe for Cheesecake and I know he has eaten that before. I'll give it a try. Thanks!!!

Jump to this post

Too bad about eggs. Something else that usually is tolerable is Progresso split pea soup with ham chunks added. I guess not everyone likes pea soup but it feels like a comfort food.

I forgot if you mentioned what type of cancer you guys are dealing with. My husband has GEJ cancer (gastroesophageal junction) so his gut is messed up which can affect his appetite.

Also it is not uncommon to have chemo cause nausea. He is taking Zofran (and sometimes Compazine) to try to keep it under control.

He does really try because he knows if he loses too much weight they might not give him chemo.

Here's hoping for the best for both of them.

REPLY
@lauramae3

I looked up Beneprotein - I like that it's Whey. I still can't get my hands around how much powder you put it whatever you want to put it in, i.e., how much powder for 25 calories and 6g protein per serving. Any info on that?

Jump to this post

I got the 8 oz container and it comes with a scoop. Serving size is 1 scoop (1-1/2 Tbsp or 7g).

REPLY
@hardingv

Too bad about eggs. Something else that usually is tolerable is Progresso split pea soup with ham chunks added. I guess not everyone likes pea soup but it feels like a comfort food.

I forgot if you mentioned what type of cancer you guys are dealing with. My husband has GEJ cancer (gastroesophageal junction) so his gut is messed up which can affect his appetite.

Also it is not uncommon to have chemo cause nausea. He is taking Zofran (and sometimes Compazine) to try to keep it under control.

He does really try because he knows if he loses too much weight they might not give him chemo.

Here's hoping for the best for both of them.

Jump to this post

Cancer stage 4 in at least his liver and stomach. He is going to change his diet to soups with nothing in it like Tomato Soup or broth, bone broth etc. And you're right... my fear is that he will not be eligible for cancer treatment due to his low weight. Will find out January 2nd when we meet with his Oncologist. Yes - hoping for the best for both of them!!!

REPLY
Please sign in or register to post a reply.