Do you need subjects with iRBD for inclusion in research?

Posted by bonte4webb @bonte4webb, Jun 15 11:49am

I've just read about the association between iRBD and Parkinson's. Do you need additional subjects for clinical studies. I'd be glad to volunteer.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Colleen Young, Connect Director | @colleenyoung | Jun 15 3:04pm

@bonte4webb, your question piqued my curiosity. I see that recent research has identified that the development of solated rapid eye movement sleep behaviour disorder (iRBD), where people act out their dreams, increases people’s risk of developing Parkinson’s.

There are several Parkinson's related clinical trials being conducted at Mayo Clinic. See the lising here: https://www.mayo.edu/research/clinical-trials/diseases-conditions/parkinson's-disease

You can also call Mayo Clinic Clinical Trials to see if there any trials for which you would be eligible.

@bonte4webb, have you been diagnosed with Parkinson's or are you concerned about developing PD?

bonte4webb | @bonte4webb | Jun 15 8:26pm

In reply to @colleenyoung "@bonte4webb, your question piqued my curiosity. I see that recent research has identified that the development..." + (show)

I will connect via link for possible trials where my history may be helpful.
I have not been diagnosed with PD, but my symptoms of iRBD have existed for years without being identified.
I also have a distinct neuromuscular syndrome involving my lower extremities, with significant neuropathy and loss of muscular function. This situation has been diagnosed as Charcout-Marie-Tooth syndrome.
Autonomic functions are non problematic.