Do you have calcium lumps with Forteo?

Posted by 06111945cc @06111945cc, Mar 3, 2024

I’ve been on Forteo since December 2023.

Tonight I have pain in my right fourth toe. There’s a hard lump just below the nail bed.
My toe is throbbing.

Have you experienced lumps of calcium when taking Forteo?

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Profile picture for gently @gently

teb, these small lumps, deposits of calcium are listed as a possible side effect of Forteo. You might not notice if it weren't under the nail. It could, though, be something else. You might get it checked by a podiatrist.

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The lump was not under the nail. It was at the base of the nailbed.

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I use Tirosint. It's pure of allergens but requires a note of necessity from your doctor. You can get it for $25 a month with a manufacturers coupon (unless you are on Medicare). Several of my doctors, both allopathic and naturopath, did not recommend the dessicated thyroid hormones like nature-throid because they contain additional hormones that are not found in the human body. There have also been recalls on these products as they were sometimes found to have sub-par levels of hormones. I was on them initially and found that I needed higher and higher doses. When my doctors suggested I go off them, I thought it was a good idea and switched to Tirosint and have been on that for many years with no issues.

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Profile picture for teb @teb

I use Tirosint. It's pure of allergens but requires a note of necessity from your doctor. You can get it for $25 a month with a manufacturers coupon (unless you are on Medicare). Several of my doctors, both allopathic and naturopath, did not recommend the dessicated thyroid hormones like nature-throid because they contain additional hormones that are not found in the human body. There have also been recalls on these products as they were sometimes found to have sub-par levels of hormones. I was on them initially and found that I needed higher and higher doses. When my doctors suggested I go off them, I thought it was a good idea and switched to Tirosint and have been on that for many years with no issues.

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@teb, I also have been on Tirosint for many years. I started taking a very low dose Estrogen patch last August and increased the dosage to 25 mcg 2 months ago. Now my TSH has gone up to 4.48, which is the highest it's ever been. I think that the change could be the interaction between Estrogen and Levothyroxine. I have 2 endos. One recommended taking an extra Tirosint and one said to wait, since Levothyroxine is not good for bones. I had already taken an extra one for a couple of weeks, because of my lethargy. It is very difficult to have to choose between having energy and good bones. I also have read that hypothyroidism is bad for bones.

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Profile picture for drsuefowler @drsuefowler

@teb, I also have been on Tirosint for many years. I started taking a very low dose Estrogen patch last August and increased the dosage to 25 mcg 2 months ago. Now my TSH has gone up to 4.48, which is the highest it's ever been. I think that the change could be the interaction between Estrogen and Levothyroxine. I have 2 endos. One recommended taking an extra Tirosint and one said to wait, since Levothyroxine is not good for bones. I had already taken an extra one for a couple of weeks, because of my lethargy. It is very difficult to have to choose between having energy and good bones. I also have read that hypothyroidism is bad for bones.

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@drsuefowler I've had a small and gradual increase in my tirosint dose over the years but nothing dramatic. From what I understand, thyroid function naturally diminishes as we age and TSH rises though estrogen can also impact function. We have to be careful not to increase thyroid hormone too much which could negatively effect bone metabolism and of course, long term use of thyroid hormone is not great for bones. But what choice do we have? I have Hashimoto's so I need to be on tirosint. HRT along with diet and exercise seems to have been working in favor of maintaining my skeleton with a possible gain if my last Dexa was correct (I'm always skeptical).

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Thanks @teb. The estrogen appears to be working for me as well so far, as well as exercise and diet. I was upset to learn that Levothyroxine was bad for bones. Like you wrote, some of us have no choice but to take it.

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Profile picture for drsuefowler @drsuefowler

@06111945cc I also have hypothyroidism and wonder why my osteoporosis is so bad. I also am very petite and was underweight for a long time. I was very active physically until the fractures got in the way. I asked my endo about cutting back on my Levothyroxine to increase Estrogen and help my bones. He said I wasn't going to get any. I keep thinking that Estrogen is the answer and may use that after I am done taking Tymlos.

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@drsuefowler
HRT can be riskier in your 60s. How old are you???

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Profile picture for ipg @ipg

@drsuefowler
HRT can be riskier in your 60s. How old are you???

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@ipg, I'm 75. I think that my other options, Prolia or Reclast, are also risky. Thanks for your concern.

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Of course. It’s m scared. I have a potential risk for MRONJ due to mandibles exostosis. I’m on Synthyroid as well. Will be 70 in September. Scared beyond belief. After possible Forteo or Tymlos what can I do?? questions- what did you take before HRT, how long have you been on it, and side effects for any? So appreciate your response

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