Do you have a phone app or website to track food, symptoms, pain?

Posted by mojo55 @mojo55, 3 days ago

I’ve got UCTD, Raynauds, perhaps fibromyalgia and have had history of stomach ulcers and colon cancer. I’ve already cut out red meat and pork and am feeling better. Now I’m trying to cut gluten, sugar, alcohol and most dairy products to see if I feel better. I’ve got joint pain all over, right hand, left knee, and hip are worse with numbness and weakness. Despite tons of PT my balance is awful so I use a cane. It hurts to keep writing so I’m hoping to find a phone app or website to keep track of food, exercise, meds to record info and patterns for myself and for doctors. Thank you for any suggestions!

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Use your note app on your cell phone. That’s what I do. If what I ate the day before doesn’t affect me the next morning I write no affect and start the next day.
Caffeine, pasta and sugar hurts the worse

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@artemis1886

Use your note app on your cell phone. That’s what I do. If what I ate the day before doesn’t affect me the next morning I write no affect and start the next day.
Caffeine, pasta and sugar hurts the worse

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Oh, I like your idea! Simple enough for me, I’m not great with technology. This way I can make notes of whatever, even weather, without being limited to preset data. Great idea, thank you!

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I use a lot of apps on Iphone to document and help me keep track of my symptoms and nutrition. Logging my symptoms, I use an app called "Journal." Nutrition is tracked on an app called "MapmyFitness" the free version allows you to enter breakfast, lunch and dinner. The different screens provide you with total calories, proteins, fats etc.. It gives you total number of calories eaten for the day version your target goal. I also use apple "notes" for so much information. Mostly lists of meds, operations, procedures, diagnosis doctors and much more. Hope this help.

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I use the free version of cronometer - it can track all of my food, water and I add notes for reactions and pain levels.

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Hi! I have hEDS (HDS) and PBC, both of which are “unseen” when looking at me. I just recently saw and downloaded the Visible app. It’s free and actually can help track several things to help you gauge how you might want to pace yourself each day. In the AM you track sleep (scale of 1-4), heart rate and heart rate variability by putting your finger over the camera, and this gives you your “Morning Stability” (scale of 1-5). I’ve been using this for a couple of weeks now and I’m amazed at how much it’s helped me. In the PM you track if you “crashed” or not, a variety of symptoms that are scored 0-4, and there’s a place to type in anything that happened that day or what you ate, just whatever you want.
Th company offers a membership and an armband that tracks some of your vitals, but honestly I haven’t don’t that yet. There’s a cost for the armband and I just want more time to use the free version before paying.
I dont know if this is what you’re looking for, but it’s called “Visible” because it’s made to help those with “invisible” diseases and syndromes. Might be worth checking out and see if it might help.
Hope this is helpful! Best of luck on your journey. 🙂

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I didn’t post this before but I just wanted to say thank you to everyone sharing their stories, info and genuine concern for one another! I believe the world could use some positive energy. It helps to take some of the anxiety, frustration and fear of what these diseases mean and especially my unanswered questions, hesitations about medical decisions. I wish you all well!

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