1. < Polymyalgia Rheumatica (PMR)

Do we actually “recover”?

Posted by rocksology @rocksology, May 7 11:03am

Will there be a time when the PMR actually goes away, or is this a lifetime diagnosis? I have to taper off prednisone rather quickly, preferably 1mg/wk do to the effects on my heart and kidneys. My fifth referral to Rheumatology has been sent. I only have three choices within 200 miles, two are a year out, one isn’t accepting at this time. You would think since it’s causing heart and kidney failure, and the cardiologist sent the referral, they’d consider a faster appointment! Sigh… I know I’m not special and there are people hurting who have also been waiting.
I guess I just want to know that there will be a time with no prednisone or pain somewhere in my future!

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

susanalka | @susanalka | May 13 1:03pm
In reply to @jillkellyauthor "I live in a big city (Portland, Oregon) but had to wait 2.5 months for a..." + (show)
@jillkellyauthor

I live in a big city (Portland, Oregon) but had to wait 2.5 months for a rheumatologist and then
than weeks for testing. To be honest, I've had more help from my PCP who is willing to educate herself about PMR and prednisone.

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I also live in Portland and was diagnosed by my PCP who is also a geriatric specialist (I’m 73). She is very knowledgeable and I don’t have to worry about being marginalized. The long wait times for specialist is so frustrating.

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pdxmac | @pdxmac | May 14 10:19am

Are you by any chance with Kaiser? I'm trying to find a new PCP that is better than the one I have

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jillkellyauthor | @jillkellyauthor | May 14 11:30am
In reply to @pdxmac "Are you by any chance with Kaiser? I'm trying to find a new PCP that is..." + (show)
@pdxmac

Are you by any chance with Kaiser? I'm trying to find a new PCP that is better than the one I have

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I'm not. Providence

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slh317 | @slh317 | May 14 4:13pm

I am 74 and had PMR in 2020. After 10 months on Prednisone (decreasing 1 mg per month) I am fully recovered. My rheumatologist said that because I had no relapses for the last 5 years I am basically “cured” but as with many autoimmune diseases there is always a chance it could return.

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