do Tinnitus tests actually achieve anything that helps ?

Posted by storm6 @storm6, May 30 2:11pm

I willingly agreed to a vestibulor test with the hope that it would show what was making my balance , unbalanced ,a reason why I had an annoying clicking noise at the base of my skull, no pain ,just very annoying. It was an exhausting test , for almost an hour plus .with a quite hurtful strong twisting of my head. The results were mixed ,but
my Tinnitus was not an ear fault ,but my brain ,not receiving the correct messages , The clicking became worse ,it used to happen occasionally, but now happens 30 * times a day . I have asked if an MRI, or CT scan could be done ,to see if a nerve had become trapped or damaged due to the test .A conclusion that has been made ,by me ,is ,not to be so trusting ,in future , The absolute worst outcome is ,that the Tinnitus now ,is 24 hours a day ,and moved up to soprano level , I am NOT a happy bunny !!!!

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It will probably go back to baseline. Mine fluctuates with various triggers. My brain has gotten used to it mostly. I felt desperate the first few months I had it.
Doctors really have nothing to offer but maybe they wanted to eliminate causes for you. Tinnitus is commonly explained as coming from the brain but results when the brain tries to fill the void from hearing loss.

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The best thing I ever did for tinnitus/hearing loss was to get hearing aids last December. It has helped tune out the tinnitus about 90% in both ears and my hearing is so much improved.

They are an adjustment to get use too and I had to be patient with myself.

I wish you the best and praying for you.

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@covidstinks2023

The best thing I ever did for tinnitus/hearing loss was to get hearing aids last December. It has helped tune out the tinnitus about 90% in both ears and my hearing is so much improved.

They are an adjustment to get use too and I had to be patient with myself.

I wish you the best and praying for you.

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Hello ,fortunately ,my hearing is excellent ,so ,I really don't really need any help in that department ,It is the constant noise that won't go away .I have been given various white noise ear "thingys " but they only make the Tinnitus adjust itself to the noises .I have just been given a Sleep sound Therapy System by the ENT
clinic ,that has an alarming instruction leaflet ,or ,booklet.that may help ,I will let
you know

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@windyshores

It will probably go back to baseline. Mine fluctuates with various triggers. My brain has gotten used to it mostly. I felt desperate the first few months I had it.
Doctors really have nothing to offer but maybe they wanted to eliminate causes for you. Tinnitus is commonly explained as coming from the brain but results when the brain tries to fill the void from hearing loss.

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not wishing to repeat myself ,but I have excellent hearing ,maybe my brain goes through some voids ,but not in anything that gives me an hour or two of silence ,I have put up with this annoying dilemma for 12 years ,and nothing makes it acceptable I cannot understand why there aren't any inroads to solving this
problem that a great number of people have to endure. There is nothing that can be pressed ,rubbed or stroked ,that will reduce this menace, and give me some peace and quiet ,My Tinnitus does not follow a trigger point ,it just goes
on and on and on and on ,

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@storm6

not wishing to repeat myself ,but I have excellent hearing ,maybe my brain goes through some voids ,but not in anything that gives me an hour or two of silence ,I have put up with this annoying dilemma for 12 years ,and nothing makes it acceptable I cannot understand why there aren't any inroads to solving this
problem that a great number of people have to endure. There is nothing that can be pressed ,rubbed or stroked ,that will reduce this menace, and give me some peace and quiet ,My Tinnitus does not follow a trigger point ,it just goes
on and on and on and on ,

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@storm6 my tinnitus never stops. By triggers I mean things that make it much worse for awhile, but it is always there regardless. I have mild hearing loss in the upper range on the left side, which doesn't really explain it. I think tinnitus falls through a crack between ENT and neurology and even neurotology and there really isn't much help. Audiologists have been suggested but not sure they would help either. Have you tried masking, or hearing aids? I cannot play rain sounds at night: I wake up without any sense of balance and facial numbness. The problem is on our brains, we are told, but loud noise definitely causes me some symptoms.

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@windyshores

@storm6 my tinnitus never stops. By triggers I mean things that make it much worse for awhile, but it is always there regardless. I have mild hearing loss in the upper range on the left side, which doesn't really explain it. I think tinnitus falls through a crack between ENT and neurology and even neurotology and there really isn't much help. Audiologists have been suggested but not sure they would help either. Have you tried masking, or hearing aids? I cannot play rain sounds at night: I wake up without any sense of balance and facial numbness. The problem is on our brains, we are told, but loud noise definitely causes me some symptoms.

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my favorite place ,a good windy beach, standing at the edge of the waves ,surrounded by nothing , I did ask if I could have a head replacement , my sense of humour does not always reach some humans ,but it gets me through dodgy
stuff, I always manage to find the funny bits in situations , My doc tells me not to lose my sense of humour , it took me ages to find his !!!!! I have met various levels of brain and hearing experts ,and I do sometimes wonder what they are being paid to do , What are the symptoms of TNT The various sounds that sufferers hear vary enormously .and I have read that it has been known to cause self harm and suicide , I do ,or did ,enjoy reading ,but that pleasure has been removed . Do you think that if an expert really tried ,they could find the route the noise uses to warn the brain ,and block it ,with a dab of super glue or nip the offending road and just remove it , Just a thought !!!!

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@storm6

my favorite place ,a good windy beach, standing at the edge of the waves ,surrounded by nothing , I did ask if I could have a head replacement , my sense of humour does not always reach some humans ,but it gets me through dodgy
stuff, I always manage to find the funny bits in situations , My doc tells me not to lose my sense of humour , it took me ages to find his !!!!! I have met various levels of brain and hearing experts ,and I do sometimes wonder what they are being paid to do , What are the symptoms of TNT The various sounds that sufferers hear vary enormously .and I have read that it has been known to cause self harm and suicide , I do ,or did ,enjoy reading ,but that pleasure has been removed . Do you think that if an expert really tried ,they could find the route the noise uses to warn the brain ,and block it ,with a dab of super glue or nip the offending road and just remove it , Just a thought !!!!

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I think we need a brain transplant 🙂

I like the idea of standing on the beach. Enough noise to mask the tinnitus and maybe a feeling of silence if not actual silence.

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@windyshores

I think we need a brain transplant 🙂

I like the idea of standing on the beach. Enough noise to mask the tinnitus and maybe a feeling of silence if not actual silence.

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you mean you have never actually done it ?????????
Your reason t'etre seems to revolve around TNT . There are huge beaches that are devoid of "noise" except for the gentle lap of lazy waves .My brain is not involved in this ,at all. However ,at this point i time ,I am in bed ,doing my morning chats ,with the company of you know what, Being a person of impulse ,it would be possible to for me to jump in the car ,and visit the coast , it usually takes an hour and some ,with a reasonable traffic flow,. this impulse is losing ground ,because of ...traffic ,,,parking ,,masses of humans ,and, noise .I'm a country girl at heart ,I prefer horses and fields ,total stress removers.
Mahjong .my daily addiction is next ,Whats your ????????????

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@windyshores

I think we need a brain transplant 🙂

I like the idea of standing on the beach. Enough noise to mask the tinnitus and maybe a feeling of silence if not actual silence.

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I have to ask, how do you cope with sleep ? I find it very difficult to actually fall asleep, Noise climbs ,and my brain becomes very active ,and I can't shut that down either , so ,I do get quite depressed through lack of sleep,that's when the seaside comes in handy

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Once again it got louder while reading this thread!

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