1. < Polymyalgia Rheumatica (PMR)

Do not want to take steroids.

Posted by sandyclaire1313 @sandyclaire1313, Nov 18 11:38pm

I was just diagnosed today and I am considering not taking any steroids. Their side effects out way the pain. Initially I saw a physical therapist and the exercises helped and those type of exercises also help with our diagnosis. The pain is worse in the morning but as the day goes on the pain dissipates. I appreciate any feedback and your thoughts.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

gizlush | @gizlush | Dec 8 12:53pm

After I was diagnosed with PMR I was put on steroids and that was the last thing I wanted. I have since been put on Kevzara and after 4 treatments I am no longer taking steroids. Most of the pain and discomfort I had, in my hips and shoulders, is gone. How long I will have to take Kevzara I have no clue but I will ask my doctor the next time I see him.

REPLY
mbsunburst | @mbsunburst | 1 day ago

I have polymyalgia rheumatica and have had for a couple of years. Until recently I was taking infusions that helped with the symptoms of rheumatoid arthritis, fibromyalgia and polymyalgia rheumatica. I developed kidney infection that was septic and 2 weeks later, a uti infection that was septic so I have discontinued infusions. When I initially had polymyalgia rheumatica I took prednisone and had panic attacks while in bed at night. I stopped taking and although the symptoms have come back, I do not want to take prednisone again. I will just have to tough it out.

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | 1 day ago
In reply to @mbsunburst "I have polymyalgia rheumatica and have had for a couple of years. Until recently I was..." + (show)
@mbsunburst

I have polymyalgia rheumatica and have had for a couple of years. Until recently I was taking infusions that helped with the symptoms of rheumatoid arthritis, fibromyalgia and polymyalgia rheumatica. I developed kidney infection that was septic and 2 weeks later, a uti infection that was septic so I have discontinued infusions. When I initially had polymyalgia rheumatica I took prednisone and had panic attacks while in bed at night. I stopped taking and although the symptoms have come back, I do not want to take prednisone again. I will just have to tough it out.

Jump to this post

Welcome @mbsunburst, You might want to reconsider just trying to tough it out. Can you talk with your rheumatologist for alternatives that might help with the symptoms and inflammation?

REPLY
robinrae | @robinrae | 12 hours ago
In reply to @mbsunburst "I have polymyalgia rheumatica and have had for a couple of years. Until recently I was..." + (show)
@mbsunburst

I have polymyalgia rheumatica and have had for a couple of years. Until recently I was taking infusions that helped with the symptoms of rheumatoid arthritis, fibromyalgia and polymyalgia rheumatica. I developed kidney infection that was septic and 2 weeks later, a uti infection that was septic so I have discontinued infusions. When I initially had polymyalgia rheumatica I took prednisone and had panic attacks while in bed at night. I stopped taking and although the symptoms have come back, I do not want to take prednisone again. I will just have to tough it out.

Jump to this post

I have PMR also and did not want to go on prednisone because of panic attacks I had while on it years ago for something else. I am on Low Dose Naltrexone for the PMR. For me, there have been no side effects and the pain has greatly diminished. I noticed some improvement after a few weeks. I've been taking it for 3 months now and am seeing even more improvement.

REPLY
View MoreView Less
Please sign in or register to post a reply.