Dizziness for over 2 years.

Posted by jczarkowski1270 @jczarkowski1270, Apr 21, 2018

Fortunately, cleared from a bout of neuropathy for over two years. Now coping with dizziness, had CT & MRI to head, cleared. As formerly, researching neurology of dizziness. My CT was validated by second opinion neurologist. Fortunately, my initial physician did the most comprehensive evaluation and treatment, others not so good. My dizziness, luckily does not affect my driving, which would tax my independence and research. I am sensing a proprioceptive type of dizziness. Many medical professions have a poor concept of types of dizziness. I doubt if I have BPPV, since my dizziness is not related to position changes. I am now searching for the side effects of Norvas(dizziness for older clients).

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@krissylamb

Hi Jennifer, yes I do need surgery on my neck, C5-C6 & C6-C7 have severe DDD, circumfetential disc bulge and uncovertebral hypertrophy with moderate bilateral foraminal stenosis and central canal stenosis. But, I am afraid to have the surgery. To tell you the truth, my neck and lower back pain is nothing compared to my stomach pain, headaches, vertigo and hypotension, it's at the bottom of the list. I said I would wait until I cannot walk, Smiles! And thank you for your information with Amalgams. Unfortunately, but unlucky for me, July 2013 I had my two back left bottom molars replaced and within 2 days had a dozen quarter sized lymph/serum filled sores oozing on the back of my head and neck. I was diagnosed for MRSA. I spent 2 years on antibiotics which made me so ill, I pretty much stayed in bed for 2 years not realizing the antibiotics were actually detoxing my system of the mercury that I didn't know I had? Along with that my husband is an amazing pharmaceutical scientist who lives and breathes health, anti inflammatory everything, vitamins, fish oil, NAC, alpha lipoic acid, etc...trying to help me get better. I finally tested Negative September 2015 for MRSA but still have the sores show up for no reason along with severe Sweets syndrome rashes on my face, neck and chest. Of course I never get the face rashes when I am seeing a doctor, or I am in between doctors? Back in the day the sores lasted for ever and the face rashes too. But now, they will show up on a Friday and disappear by Sunday, which is great, but I want a cream called Finacea prescribed so my insurance has to pay for it, ($500.00), and without my new dermatologist seeing these darn things, I have to rely on oil of olay! So, what ever mercury was able to attach itself to my brain, stomach and other parts of my body should be the only mercury left. The second the white feelings were introduced, I had all of my amalgams replaced, (probably when I was pregnant with my son, ugh). I do have an amalgam purple tattoo where one of the left molars was replaced. I did end up with endocarditis and was hospitalized for a week on Vancomycin, thanks to some idiot doctor making it okay for people with micro valve prolapse to have dental work done without amoxicillian. I believe if I had taken amoxicillian none of this would have happened. Anyways, that is just one more of the 97 more illnesses I have. Thank you again. I was told that because of my small nerve fiber neuropathy, severe allodynia and peripheral neuralgia that, yes my legs will work, but the pain may not go away, and because my legs work more often than not right now, I will wait. I am glad that you are doing good. I understand completely how long it takes to get answers, TOO LONG. Kristin

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@krissylamb Sad to say, but reading your report was very good for me. I finally found someone who is in my class of numbers of illnesses and symptoms, although you are far ahead of me in medical care. Mine is Gelsolin, a form of Amyloidosis. Just getting a diagnosis is a fight to the finish, I guess. But you have contributed to my diagnosis significantly. For a quarter century I have had a series of "..quarter sized lymph/serum filled sores oozing on the back of my head and neck." When one of them is hit fairly hard or punctured, it will bleed and ooze. Even a small child hitting me on the back of the shoulders or on the upper leg or arms will cause it to ooze. Once I happened to puncture one somehow, like with a needle or something. It oozed and bled for a couple days. It oozes foggy stuff the consistency of Elmer's glue. I don't know what it means, but I will find out. My story is at https://bit.Ly/1w7j4j8 "Amyloid and Old Karl"

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How funny that we were writing at the same time? Speaking of elderly, I finally get to go see my mother n law. We had to put her in a wonderful, brand new facility for memory care and Alzheimer's this past April, (she believes it is a wonderful hotel somehow owned by her parents because she says, "they keep telling me everything is taken care of", her expenses). She loves living there. Let me get up and get dressed. Enjoy your day!

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@oldkarl

@krissylamb Sad to say, but reading your report was very good for me. I finally found someone who is in my class of numbers of illnesses and symptoms, although you are far ahead of me in medical care. Mine is Gelsolin, a form of Amyloidosis. Just getting a diagnosis is a fight to the finish, I guess. But you have contributed to my diagnosis significantly. For a quarter century I have had a series of "..quarter sized lymph/serum filled sores oozing on the back of my head and neck." When one of them is hit fairly hard or punctured, it will bleed and ooze. Even a small child hitting me on the back of the shoulders or on the upper leg or arms will cause it to ooze. Once I happened to puncture one somehow, like with a needle or something. It oozed and bled for a couple days. It oozes foggy stuff the consistency of Elmer's glue. I don't know what it means, but I will find out. My story is at https://bit.Ly/1w7j4j8 "Amyloid and Old Karl"

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I have goose bumps all over my body and immediately started to cry. I have never heard of anyone with these sores. I got one on my left arm one day walking up the stairs. It wasn't the store but my skin just tore off, I had no idea and I woke up from a nap with blood all over the sheets. And I had one of the sores early on break out on my ankle. The first test by doctor did was for Amylidosis, and it came back negative which is crazy because I al also have all of those symptoms. I read a report from this oncologist at UCSD, Dr. White, she said that she wasn't sure what was wrong with me because when she asked if I had something I did? Guess what, unfortunately every test she ran I HAD, including my anal sphincter not working, I could not pass the balloon test, DUH! I made them change their report to not say, "she says she has al man ental poisoning", it was even worse spelling. I realize now that once I said the word ELEMENTAL, doctors stopped listening. They still don't, hahagagahagahaga! That's my laugh at myself! I will read your story this afternoon. Thank you for the goosies!

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@krissylamb, please tell me how you do. Do you know what the test was the doctor gave you? Alnylam has a program to send info to your doctor to help them with a diagnosis. I will be happy to look it up.

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