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Diverticulitis with C.difficile

Posted by fpats17 @fpats17, Mar 20, 2019

hello all and I am glad I found this site. I was recently diagnosed with diverticulitis in August. Spent 3 days in the hospital, w/micro perforation put on liquid diet and IV antibiotics. Cleared up.. fast forward to January 2019 CT scan reveals I had MILD diverticulitis but no pain this time and only slight change in bowel habits. Back on low fiber and treated with usual cipro and flagyl. Now here we are March and follow up ct scan says diverticulitis again, But between January and March got C Diff along the way and then e coli while in Mexico. I demanded to be put on a different antibiotic so they gave me Amox/Clav but second culture still says I had c diff. Now I cannot tell if this is c diff or div. Doctor ordered me Deficid for the c diff since the amox/clav should handle the div. I am sure hoping that this is just the c diff and the deficid will take care of it! But at my wits end.

Based on what i read and on this site and others I have spoken to, the diverticulitis seems to come back even after surgery. I am seeing a surgeon next week but am very reluctant to get a resection if it is not going really solve the problem. Also, has anyone else dealt with both c diff and div at the same time? This is completely nuts! any guidance or insight would be helpful since this is driving me insane. thank you all. fpats17

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lexiebea | @lexiebea | Sep 6, 2023
In reply to @pixie1960 "@lexiebea - WOW! I had no idea the FMT was available 9 years ago. Sounds like..." + (show)
@pixie1960

@lexiebea - WOW! I had no idea the FMT was available 9 years ago. Sounds like they were quite rare. Also sounds like you had a very rough case of Cdiff! It was certainly very kind of the Florida Doctor to send you everything necessary Next Day. I am dodging Antibiotics every way I can! I certainly don't want another Broad Spectrum Abx either! I am very glad you have done well for so long after the FMT! I am going to have to check into the Kefer . I read a bit on it so far today, and its a better Probiotic than yogurt I understand.

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The Lifeway Kiefer taste the best . They have a few different flavors which made it tolerable but be aware it’s loaded with carbs. Since the CDIFF I now have to deal with digestive issues due to the damage that was done from this awful disease ,so I really watch what I eat.
I never even knew what CDIFF was until I nearly died. I had no warning . I collapsed on the floor waking to my dog trying to get someone’s attention in my house since it was in the middle of the night. By the time I got to the hospital my BP was 45/25 . After 5 long days they finally came up with CDIFF as my diagnosis. One of the worst and scariest times in my life. They sent me to the infectious disease center and that’s when I found out the toxin I had was antibiotic resistant . They had no info that they could give me. That’s when i realized I was on my own. After a month I found the Dr in FL it was very rare back then. Clindamycin and few others comes with a Black Box warning that no Dr or Pharmacist will warn you when prescribing it to you or maybe it was just my Dr 👩‍⚕️

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