Difficulty regulating body temperature. Does anyone else have this?

Posted by ladyaceintx1 @ladyaceintx1, Nov 30, 2023

For the last several years after having COVID in 2021, I have had difficulty maintaining a warm body temperature and if I get too cold, it is almost impossible to warm up which drops my blood pressure, gives me chills and causes hypothermia.
I've just dealt with it but sometimes without warning it just "zaps" me...causing me to run for a blanket, hot drink or shower which only mildly helps. I've stood shivering in a scalding hot shower.
Has anyone else experienced this? What causes this condition and what has helped you deal with it? I haven't had any testing done but would be interested in learning more about this.

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@lkgavin59

I am post-menopausal. In February I got Covid and my body temps kept going up and down. Three months later and I am still having issues with my body temp regulating. It’s not the same as hot flashes. I’ve had blood tests since the Covid and the results were that everything is normal. It’s so frustrating!

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@lkgavin59 Welcome to Mayo Clinic Connect. I echo the thoughts that @ladyaceintx1 has, about thyroid and pituitary.

Which blood tests have you had? I find that since I have several health concerns, my body temperature fluctuates quite a bit. Even changes in medications can cause me to go from feeling too warm to bundling up, within a short time! People laugh when they see my car. Different layers for however I might feel on any given day. Best to be prepared.
Ginger

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I would definitely have your Thyroid levels checked. You could be hyperthyroid, which causes your body to be cold. You’ll need medication for the rest of your life if that’s what it is. I have hypothyroidism with Hashimoto’s and occasionally feel that way. The Thyroid test is just a blood draw, but they did away with keeping it as a regular thing that is checked. You now have to ask for it…good luck!

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@lkgavin59

I am post-menopausal. In February I got Covid and my body temps kept going up and down. Three months later and I am still having issues with my body temp regulating. It’s not the same as hot flashes. I’ve had blood tests since the Covid and the results were that everything is normal. It’s so frustrating!

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@lkgavin59
I am 54 and think I am entering menopause after several years of perimenopause systems (need to get IUD removed to confirm no more periods). I finally got diagnosed with Hashimoto’s and hypothyroidism. It took longer than it should have. You should see an endocrinologist for them to listen to all of your symptoms and then have TSH, T3, T4, TPO, etc. full thyroid bloodwork panel. You may fall within the “normal” TSH range but your symptoms indicate that something is off and not optimal for you. My TSH would be 1.5-3.0 and I felt terrible! Like a zombie! I feel better now with TSH at 0.3-0.5 (needs to definitely be below 1.0). You also need to see if you have thyroid autoantibodies in your blood which show up if your body’s immune system is attacking your thyroid.

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I never had Covid, luckily,but I know exactly what you are talking about. I am always cold. Sometimes the chills get so bad I literally shake. The only thing that helps me is sitting with a heating pad on my lap. I am being tested for low iron or B12. Not sure what causing it,but assume it has to do with Sjogrens.

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@lkirnbauer

I would definitely have your Thyroid levels checked. You could be hyperthyroid, which causes your body to be cold. You’ll need medication for the rest of your life if that’s what it is. I have hypothyroidism with Hashimoto’s and occasionally feel that way. The Thyroid test is just a blood draw, but they did away with keeping it as a regular thing that is checked. You now have to ask for it…good luck!

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I have the same problem. I have had my thyroid checked and it is perfect. I think it is just another Sjogrens symptom. The only way I can get warm is to sit with a heating on my lap😕 I get chills so bad I literally shake. I am having my iron and B12 checked but I don't think it is either if these.

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@pat21

I have the same problem. I have had my thyroid checked and it is perfect. I think it is just another Sjogrens symptom. The only way I can get warm is to sit with a heating on my lap😕 I get chills so bad I literally shake. I am having my iron and B12 checked but I don't think it is either if these.

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@pat21 You need your Cortisol level checked and a Pituitary panel done to check for Adrenal Insufficiency. One main symptom of this condition is severe cold intolerance and the inability to maintain a normal body temperature. An Endocrinologist manages this condition.

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@ladyaceintx1

@pat21 You need your Cortisol level checked and a Pituitary panel done to check for Adrenal Insufficiency. One main symptom of this condition is severe cold intolerance and the inability to maintain a normal body temperature. An Endocrinologist manages this condition.

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Thank you. I will look into it.

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I was never one to experience hot flashes when I was going thru menopause, but since I have CIDP and MGUS, I get overheated very easily and start to,sweat.
That causes a problem with my husband because he’s always cold and keeps the air conditioning set at 77-78,which is way too hot for me.
Seems s soon as I wake and start moving around,I’m hot and start to sweat.
This was never an issue before, but seems like it’s getting worse this past year.

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@harley22

I was never one to experience hot flashes when I was going thru menopause, but since I have CIDP and MGUS, I get overheated very easily and start to,sweat.
That causes a problem with my husband because he’s always cold and keeps the air conditioning set at 77-78,which is way too hot for me.
Seems s soon as I wake and start moving around,I’m hot and start to sweat.
This was never an issue before, but seems like it’s getting worse this past year.

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@harley22 are you on hormonal supplements? Have you also had your Thyroid and labs checked recently?

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No im not on any hormonal supplements and my thyroid function labs have all come back within normal range.

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