Difficulty holding down a stressful full time job
I am just looking to hear from anybody else about struggles with holding down a high stress, high demand job with fibro. I have had my job for over 25 years & it has always been very high stress. I only have 2 years left to reach retirement but I am struggling terribly with chronic pain, migraine & brain fog. It is hard for me to concentrate & navigate systems & I also started having issues with speech (aphasia). My job is basically talking on the phone all day to customers. The only breaks I get away from the phone is on my breaks & half hour lunch. It is such a struggle daily trying to stay focused & sometimes just to talk. I have also been diagnosed with a functional neurological disorder with speech issues. I started having the brain fog & speech issues about 4 years ago. My job is not flexible on the hours. Also, there is always loud music blasting in the whole office which they refuse to turn off or lower the volume there are speakers in every area of the office). I have tried noise cancelling head phones and it helps some. Just curious if anybody else struggles daily just to be able to work & what your experiences are.
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Unfortunately the company & employee relationship where I work is not good. The area manager is who refuses to make changes to the volume of the music as well as other loud chaotic noise that just shouldn’t be done in this environment. My doctor has asked for accommodation of the noise cancelling head phones which the company did end up providing but they aren't the best but definitely help some. I am looking into possibly purchasing my own headphones of better noise canceling quality if I can find some. Also checking out different exercise or stretches that my body will tolerate. My dr is currently working on filling out a job accommodation request for additional breaks, dr appointment time & additional time off work as well as to be seated away from loud music & other loud noise. Hopefully that will help me manage to at least be able to make it through each day & hopefully make it my 2 yrs I have left.
I also have to make it a huge priority to take care of my mental health like you said in your post. Thankfully my husband has been very supportive.
It's great to hear you have a supportive doctor, let them advocoate for you! Also, a supportive and loving husband.
Find the exercise or movments techniqes that work for you, it does cause some discomfort and pain from a couple of hours to a few days afterwards but the benefits of maintaining your muscle tone and strength, keep mobility in your joints you will thank yourself later on. (otherwise being non active will reduce your mobility in the future).
I thought I had a bunch of different problems until I got to Mayo and learned I have ehlers Danlos syndrome. I was misdiagnosed most of my life. Mayo is the only place I found that truly understands fibro and EDS. It’s a hard journey to get an accurate diagnosis and treatment.
Getting a cold plunge setup at home has been very helpful for me. Significantly improves inflammation and tension all over. The nice thing about doing it at home is you can build up to cold temps. Even 70 degree water makes a difference.
I am assuming you mean myofacial release therapist? I personally like that type of body work in certain parts of my body. It is hard to find and costly, but If I could I would get it for upper back and neck. Apparently some people cannot tollerate it and others it can make things worse. One person made it worse, but mostly it helped me.
Oh and yes I tested positive for celiac disease like you did.
Want to tell you I have had success with the Bose earphones over the ear. I found the beats earphones hard to use.
Yes, that’s what I mean. Sometimes you have to go through a couple of them to find the one that’s right for you. I certainly did. There are some that charge a shit load of money because they’re used to playing a game with the insurance company. I found an awesome guy who charges $60 a visit Not $250 a visit. He is the best. When I was your age acupuncture worked great for me. And the same goes that you must find the right acupuncturist. I had a great guy who I saw regularly for maintenance visits. I was having problems in my wrist and forearm and he had went on vacation And I saw his partner. She was absolutely amazing and I never went back to the guy. The point being you have to try different people, and you have to incorporate it into your way of being. I grew into a lot of repetitive motion disorders as I aged. I wasn’t given the body to do the work I undertook. My art form became very physical in my 30s 40s 50s. I wasn’t prepared for that but me being the pigheaded fool that I am that’s the work that I was passionate about as my body continued to deteriorate. I had to find an incorporate ways to sustain my work. Being pre-menopausal saw another downturn in my bodies ability to do the physical work that I undertook in my 20s by the time I got to my 40s. I never really believed in the fibromyalgia diagnosis and at times I could certainly overcome it. I just keep in my mind What I want to prioritize in my life and I find ways to overcome the crappy physical body that I was given, lol. Things that were important in my life to figure out was that the osteoarthritis was not causing me the inflammation I was incurring, it was the gout arthritis. And I didn’t find that out for 30 years. Also that insulin resistance played a dramatic part in my life in that When your body is not producing what it needs to pain occurs. Now that I am on metformin, my bodies, sending the insulin where it needs to go-– my muscles. All of this comes 30 years too late. In the meantime, I worked with nutrition yoga was great. Acupuncture was great acupressure was great a variety of supplements. I am L carnitine deficient, and I continued to test metabolic things to find out things about my body. I am in much better condition at 68 then I was at 35 all except for the degenerative disc disease it certainly a journey. You can embrace and incorporate it or you can alienate from it and be miserable. Everybody’s got something.
I appreciate everyone that commented with your experiences & recommendations & encouragement. You are all such caring people & have helped me feel not quite so isolated & alone in all of this & it is encouraging to keep trying to find solutions.
Retired RN here I was having severe pain back in 2012 to where I could not function
I lost my job if I remember right it was a mutual decision for me to stop working
I have now been fighting for disability for over 11 years
Pain, brain fog, was and is the worst