Diagnoses
Just recently learned that I have a pain syndrome that involves fibromyalgia. I was told this a couple of weeks ago. Learning about it this week it makes sense why I’ve struggled for so long. Before being told about my condition I thought I could be fixed with medication and I could go on with my life. But now I realize it’s life long. I’m just sad and no one to talk about it. I don’t have any friends. Things I planned to do I feel like why even try now cause I know I’m going to be in pain. Just wanting suggestions on how to cope with this. Thanks for reading.
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I am sorry that you're going through so much. I am known as guinea pig lover for a reason. Pets are a wonderful diversion. I have lost friendships through not keeping in contact, Iooking back it all seemed to much at the time. I think we all live at slower paces than everyone without the condition and at times it is hard. I was always outgoing before this crept up on me. I am now learning to enjoy doing things at my pace and saying no to things and if people don't understand is it really worth having them in your life?. Living alone has it's plus sides, try and focus on positives!. I lived on my own for 10 years before getting married and although social at the time I was glad to have my own space. It will be exciting getting a puppy when it happens, and although one door has closed ( losing job) another door will be opened. Plus you never know what will happen in the future. My church friends have always been there for me and yes here we go again, I believe in the power of prayer.Treatments are changing all the time / research is on going.
Trust me if you ever meet a partner that doesn't accommodate your needs they aren't worth being with but don't lose hope, anything can happen when you least expect it..... We all have very bad days but we can also have very good days.You sound like a wonderful caring person who would make a wonderful partner to the right person .
Best wishes and squeaks from my little furry guinea pigs.x
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1 Reaction@cyndigarrison Hi Cyndi, in the beginning before I found out what was wrong with me, I was told I had RA and neuropathy. I had a few women friends, but it was nothing more than chit chatting. Once I told them I had RA and neuropathy I was blocked. The have also been a few people that have left me with a last message of saying they will pray for me. But I realize this is something I will have if I try to date. I did try an app for people with illnesses but unfortunately there is no one on those things. So, I just making peace with not dating. It's depressing but it could be worse.
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1 Reaction@jasonbrooksf I’m alone as my partner of many years passed away in April, 2021 followed by our 14.75 yr young pup, 6 months later.
All of my family have passed with the exception of my brother. He lives about 100 miles from me, however we are estranged. He & his wife are very social & enjoy their lives. I am who I am, & finally, I make no apologies about myself. I’m relatively introverted & now have quite a bit of social anxiety because people can see no appearance of the problems with 2 autoimmune diseases…with the exception of some weight loss & gain. I have severe fatigue as well. I no longer feel like sharing with others the extent to which the autoimmune diseases impact me, so it’s just easier to withdraw & live my life in peace. I know that I’m much older than you at this point, & I really have no interest in putting myself out there, again. I was diagnosed at 58, but I now know that I had all these symptoms for probably 25-30 years prior.
How large is your Dad’s pup?
I totally understand about losing your job as I had to take disability four months prior to being able to just retire. It feels like if it’s not one thing, it always another. However, I have total faith in God, knowing He will never leave or forsake me. I do my best not to be fearful because deep down I know, He will see to my every need. That’s one reason I’ve chosen the Lord & the unconditional love and forgiveness He promises, as well as the pup & her unconditional love that God has placed her in my life. I totally believe that’s why dog spelled backward is God. I believe that they have a connection that many just don’t understand.
You can call me a nut case, but I believe what I’ve written with all my heart.🩷
I do my best to take one day, one step at a time & do my best. A couple of my acquaintances understand that I never know from day to day how I’m going to feel…& the way I feel during one day can turn around very quickly. How can a person explain to someone else what they don’t completely understand themselves. I do my best to stay positive & calm…..& as my Mom used to say, “This too shall pass!”
Hang in there, friend & continue considering a pup… not necessarily a puppy but an adult or senior. Prayers & best wishes to you!🙏💙😊🌻
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1 Reaction@smc55 My Dads dog isn't too big but he is very active. He's probably 1.5 years old now and still is coming out of the puppy stage. I'm just worried he will run into stuff and accidentally break everything in my place. And he needs to be walked constantly. I dont want him to have zoomies in my place. I do appreciate you sharing your experience. Did you live overseas? The reason I ask is because I see that I get your replies along with others when I'm sleep. I live in the U.S.
@jasonbrooksfIm very sorry to hear that. Don't give up though! And if you haven't had these problems for long, like I said, time will give you more perspective. And, I didn't know there was a site for people with disabilities! I think that's cool. I think that there's more of us out there than we realize. And so what if there's limitations? We still have other good qualities!
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1 ReactionDear all,
It's lovely to be reminded we all have other good qualities!. It's also good we have places like this where we can share our experiences.
I say make the best of every day and on bad days let's be kind to ourselves.
Best wishes Guinea pig lover.x
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1 ReactionOne Day at a time sometimes one minute. Be kind to your body. Incorporate a routine of chair yoga and a gluten free diet helps some.
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1 ReactionI was on a gluten free diet for 3 years as before getting diagnosed with fibromyalgia last month. I had villi blunting that could have been celiac but my bloods didn't test positive. Looking back gluten free did help my symptoms for a while but they were still there but not so intense. I am doing chair yoga when I remember, I try daily. I haven't noticed much of a difference but it's early days.
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1 Reaction@guineapiglover thank you for the kinds words. I really appreciate it.
We all need to help each other,
A few kind words and taking a tiny bit of time out of your day doesn't cost anything. It's horrible living with fibromyalgia and all its symptoms but we can live our lives to the best of our abilities even if it's a smaller enclosed world it doesn't make us any less of a person. On bad days just know there will be good days....
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