Diagnosed with sarcoma? Let's share

Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.

As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi’s sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.

Let’s get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?

Liked by Dee

@sherirp

Thanks so much for your reply! I am seeing a breast surgeon today and will know more about my sarcoma team. I know we can beat this!

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Hi @sherip how did the consult with the breast surgeon go? How are you doing?
@zazu, how are you? Did you ever consider genomic testing?

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@colleenyoung

Hi @sherip how did the consult with the breast surgeon go? How are you doing?
@zazu, how are you? Did you ever consider genomic testing?

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I have started aggressive chemo treatment first, then planning mastectomy in January. They will do genomic testing when I have surgery. I am currently doing well but just started chemo a few days ago.

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@colleenyoung

Hi @sherip how did the consult with the breast surgeon go? How are you doing?
@zazu, how are you? Did you ever consider genomic testing?

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I had my surgery 2.5 years ago. I am slowly feeling better. From what I understand, I am cancer free. If I get recurrence, then genomic testing would be done.

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