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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Apr 24 6:07pm | Replies (775)

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@christine19

Hi Valerie, You might try acupuncture for pain. Also yoga may help with breathing easier.
Best of luck on your diagnosis. Let’s hope it’s NOT cancer and you get some relief soon. /christine19

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Replies to "Hi Valerie, You might try acupuncture for pain. Also yoga may help with breathing easier. Best..."

Thank you. I've tried every rub, cream, herb, yoga, meditation, etc you can think of. The only thing I haven't tried is acupuncture. I guess I need to research it but can't see how it would help? The B'ham docs went back and forth with a 50/50 cancer diagnosis and that is why I finally decided to come to the Mayo. I feel strongly that they will be able to help me but honestly, the symptoms are so great the FEAR of cancer is very heavy on me right now and has been for the past five months. Looking for any relief I guess, even if it's just someone to talk to...

Pain is such a personal struggle. I think it is important to trust yourself AND be open to new strategies. Not an easy balance to find. But little about this experience is easy, is it? You are listening to options and I trust you to decide what is best for you. Accupuncture was very helpful to me in the past and I would not hesitate to return if it feels right again. It is not helpful for everyone but it is not dangerous either so, worth a try?
It is rare indeed to talk to a person with cancer who is not overwhelmed with FEAR at least part of the time. I know I was driven to complete distraction! Not knowing was the hardest thing for me. Knowing what I had was devastating but, strange as it sounds, I got used to the idea. Okay, it took months, but I got there. I've had a recurrence and the data is not encouraging. But I feel okay most of the time, have a few knits that allow for me to go up and down the #50 that I keep gaining and losing, and am finding joy and purpose most days though I have had to stop working and close my business. And I haven't been in-patient with complications in 2 chemo cycles (my personal record)!
You haven't had a chance to "know" so you can get used to anything. I believe you will get some answers at Mayo. They are so well-respected around the world. Then you too will be able to start to adapt to whatever you learn. There is certainly grief with a cancer diagnosis but you can do that, too, IF you have to do so. If not, YAY! Then you still have to find pain control strategies right for you.
During one of my hospitalizations this year, I whined to the attending that, for me, chemo was a full time job. She replied that she told sarcoma patients that all the time! It wasn't good news, but it was normalizing. Hopefully, talking on this site is also normalizing for you; it has been for me and I feel understood by others who have "been there". I pray you learn more very soon.

@ventibug I am sorry to hear about your recurring, praying all goes well!