Connect
Diagnosed with sarcoma? Let's share
Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.
As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.
Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?
Like
Helpful
HugInterested in more discussions like this? Go to the Sarcoma Support Group.
Connect
Leiomyosarcoma, removal in 1990..
Welldifferentiated rhetrooeritoneal liposarcoma. Removed 2020 recurrence 2024
Chondro Sarcoma in pelvis
-
Like -
Helpful -
Hug
1 Reaction@leahinaustin, you may wish to connect with other members living with endometrial stromal sarcoma in this related discussion:
- Endometrial stromal sarcoma (ESS): What treatment did you get?
https://connect.mayoclinic.org/discussion/ess-cancer/
-
Like -
Helpful -
Hug
1 ReactionEndometrial Stromal Sarcoma. Diagnosed in 2018 and radical hostorectomy the same year. Been on AI inhibitor since then. Anybody on an AI for 6 years?
I have recently been found to have Kaposi Sarcoma (March)
I am not of Mediterranean background (Irish)
Just beginning treatment & would like to continue conversation
Best
Bernie
Hi Leroy,
I’m a 43 year old man who has been living with Kaposi’s Sarcoma for the past 10 years. I don’t have HIV and my physicians believe I developed it due to my Mediterranean background. In all this time, I have never found anyone else with it and I would love to connect. Please reach out.
Hi @ronnie79, you've been living with solitary fibrous tumor sarcoma for a while now. You're story and experiences would be welcome in this discussion:
- Solitary Fibrous Tumor: Anyone have experience with this?
https://connect.mayoclinic.org/discussion/solitary-fibrous-tumor/
@sdsu, there are several members who have fibromyxoid sarcoma. Perhaps you'd like to start a new discussion in the Sarcoma support group dedicated to fibromyxoid. I'll be sure to bring the others into the discussion.
Solitary Fibrous tumor sarcoma on my head. Diagnosed 11/2018