Diagnosed with squamous cell carcinoma of the epiglottis: Anyone?

Posted by williamanelsonjr @williamanelsonjr, Dec 9, 2024

I was diagnosed with Squamous cell cancer and looking to see if anyone here was diagnosed with the same condition and can share information about it to me.

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

Profile picture for postalnana @postalnana

Sound like we are on the same path. I was diagnosised with the same thing on September 15th, I have my pet scan on the 24th and my first consultation with radiology Dr on October 1st. invasive squamous carcinoma moderately differentiated of epiglottis. Im hoping to find a support group of people that have went thru it. From what i understand I will go 5 days a week to radiation for 5 to 6 weeks with chemo thrown in there ever so often. sooooooooooo here praying for you. And hopingyou get the support and answers your looking for.

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Hello @postalnana and welcome to our cancer group. We are not near as enjoyable as most groups one can join however this is where fate has brought us.
Your cancer treatment path will or certainly should be specific for you and you alone based on several factors including size, location, spread, and specific cancer type. After surgery, a sample is evaluated for specific type. That analysis will play a key roll in your follow-up treatment. It may be Chemo, perhaps one specific drug, radiation treatments, or a combination of these.
It is a lot to grasp looking forward. It is a battle not of your choosing. It is a large inconvenience in your life and those around you as well as those who depend upon you. But it is a winnable battle, more so now than ever before.
Advances just in the last ten years are amazing. Drugs such as Keytruda, which was introduced as a helper for someone dealing with metastatic breast cancer, was quickly discovered to be an excellent combatant against several other cancers including the common SSC HPV 16+ and 18+ types. Radiation treatments with Proton Beam has been wonderful in reducing damage to the very delicate structures in the fragile head and neck areas. These Proton centers now number around fifty in the U.S. and are often found within relatively easy access in most parts of the country. These were not available widely when I went through radiation, therefore I had the standard Photon and all of the related peripheral damage.
Whatever happens in the coming weeks and months regarding your forthcoming treatments, we are here to perhaps answer your questions, listen to your steam which may need to be let off, or give you some advice in how to cope with the recovery issues that may crop up.
I wish you well. And as Churchill often said, "Courage."

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Profile picture for postalnana @postalnana

Sound like we are on the same path. I was diagnosised with the same thing on September 15th, I have my pet scan on the 24th and my first consultation with radiology Dr on October 1st. invasive squamous carcinoma moderately differentiated of epiglottis. Im hoping to find a support group of people that have went thru it. From what i understand I will go 5 days a week to radiation for 5 to 6 weeks with chemo thrown in there ever so often. sooooooooooo here praying for you. And hopingyou get the support and answers your looking for.

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This is a helpful resource for head and neck cancers.
https://spohnc.org/
There are two groups in the Twin Cities, MN that meet alternate months.

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