Diagnosed with AL Amyloidosis. What can I expect?
Diagnosed with AL Amyloidosis. Would like to hear from someone about what to expect. Have not started treatment yet.
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@azlatina, Please accept my Welcome to Mayo Connect. I could not open that link about Amyloidosis either. However, even though I have no experience with Amyloidosis', I want to I want to share some information with you:
Here is the link to information about Amyloidosis from Mayo Patient Care and Health Information :
https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178
And here are 2 features that might give you some insights, even though they are not recent:
https://newsnetwork.mayoclinic.org/discussion/what-is-amyloidosis-and-10-signs-you-might-have-it/
https://intheloop.mayoclinic.org/2017/10/31/a-new-double-take-second-opinion-points-to-future-of-hope/
Michelle, Have you or a loved one been diagnosed?
Hoping the best for you Bob, You served with my brother James and he got Multiple Myeloma from his exposure to Agent Orange. Sadly, he died in 1999 from it. Also, Thank you for your service to Our Country!!!
Thanks for pointing that out, @azlatina. Unfortunately that webinar is no longer available. However, here are a couple of Youtube videos with Mayo Clinic cardiologist Martha Grogan, MD, and hematologist Prashant Kapoor, MD.
Amyloidosis: What you need to know – Mayo Clinic
Cardiac Amyloidosis – Treatment Options