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Diagnosed: MGUS

Posted by sandramgus @sandramgus, Jul 29, 2024

Hello everyone, I was diagnosed with MGUS after a routine physical, and my doctor made it sound like it wasn't that serious, but my (favorite) aunt died of multiple myeloma about 20 years ago. So, while I'm glad we caught it early, I have so much to learn. I'm still grieving the death of my mother (from a year ago) and it's a bit much to get this diagnosis after watching her die (she died from ALS.) I'm hoping to find some resources and advice here. Thank you all!

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smiles1951 | @smiles1951 | Nov 14 10:14am
In reply to @amberl99 "Appreciate the question. I just directed my pest company to skip this time while I send..." + (show)
Profile picture for amberl99 @amberl99

Appreciate the question. I just directed my pest company to skip this time while I send the chemical information to my MM specialist (I have SMM). Logic tells me yes, stop. So what if bugs eat up my house if I’m not around to see it? Now you know how my mind works! But I did ask and receive the document listing the chemical the pest company uses and will send it to my specialist. I’m not sure she will know as there’s so much about chemicals we don’t know the long term effects of.

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@amberl99 I grew up on a 360 acre Grade A Holstein farm where we pumped a chemical container and sprayed this over the backs of the herd. Flies dropped to the floor. We then went in under the cows, washing their teats and putting the straps over their backs that would hold the milkers. Seems like a no brainer now that those same chemicals killing flies entered my system and that of other farm kids and farmers.

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smiles1951 | @smiles1951 | Nov 14 10:17am

Change doctors immediately. Your current doctor doesn't seem to know anything about Multiple Myeloma and the many treatments available. Oh my gosh, I just can't believe someone is practicing medicine and not providing good information.

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