Diabetes Diagnosis, In Shock

Posted by babette @babette, Mar 26 2:45am

Some background: Once upon a time I was a healthy, active, 60 year old woman. I had low back pain, which I addressed by the occasional cortisone injection, and MS, in remission for years. My R knee began to be painful 2 years ago, and I had a total R knee replacement. The surgeon botched it, the device failed and I had to have another complete TKR on the same knee.

Next up was a long workup for ankylosing spondylitis, which I was diagnosed with one day, then diabetes the next day!

I'm a good cook but pain makes it hard for me to stand for periods of time. I think I know what I need to do, but when I ate high protein, low carb over the past couple of days I was **starving.** I am completely lost, I never thought I would become diabetic and here I am. I don't even now when to take my glucose readings. My dh is also a diabetic so I'm v. concerned for both of us.

Positive things I've done: I'm planning weight loss surgery which is probably the best thing I can do for all of my health problems; I've made 8 PT appointments for the AS; made an appointment for private yoga sessions, and I have a stationary bike.

I would love to hear about what have been your best resources for dealing with this head on?

@howardm

Dorisena, perhaps your math is slightly off on your last reply.

Babette: Yes, as previously mentioned, 45 grams of total carbs per meal is a good way to plan. Learn to read the carbs on labels, or use one of the many sites on the web that tell how many carbs are in the things you eat.

Too little carbs mean not enough energy, and sets other body issues in motion to try to raise its own blood sugar. Too many carbs means higher blood sugar readings.

On labels, read the number of servings per pack, as that is one way that food companies try to hide the actual amount. For instance, a frozen food entree should contain one meal for you of a net amount of 45 carbs (total carbs in package minus fiber).

By the way, I eat a lot of meat because I have other conditions that require lots of protein. You have to find what works for you and satisfies your dietary needs and your own wants.

Make certain you stay active in exercising, etc as that will make a huge part in helping you manage things.

Additionally one item to look at in the future is glycemic loads, and glycemic indexes. I wish you all the best in your new lifelong journey.

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@babette et al Hello, I was diagnosed w/diabetes when my glucose level was over 300 one day, out of the blue, while recuperating from CHF for several months. I take Janumex and it's pretty well controlled. Don't know why that happened, but several hormones went bonkers. I had other endocrine issues that caused the edema and CHF, now well controlled after a lot of work w/Mayo Clinic adjusting hormone levels.

I don't believe you mentioned seeing an endocrinologist or being under a diabetic specialist of any kind. I was diagnosed by my PCP, prior to my Mayo involvement, who sent me for a short visit w/diabetic nurse specialist for instruction on the what/when/how of diabetic health. It wasn't so great, but got me started.

I should have gone to an endocrinologist. They often have regular diabetic patient instruction, meetings and support. I've never had that help, but think it would be very helpful short and long-term. They offer guidance in controlling your diabetes w/diet, losing weight and all the do's and don'ts and lots of help.

I still need this help today, as I'm not controlling this as well as I want. My diabetes is overseen by my PCP. I need to have a Mayo endocrinologist, but don't at this time.

I can't cook much, so eat from the grocery deli, pre-packaged FRESH meals, delicious and only need heating, pricey but for one it's 2-4 meals and makes a lot of sense. Also, do the smoothie thing, with protein powder, w/no sugar or preservatives or additives. I've simplified my food, even frozen meals w/no preservatives, low sugar, low carbs, high protein. Do watch the sodium tho on the frozen foods….

Don't know if any of this makes sense, but it seems to work well for me at this point. Hope you find the best mix for you. Really think we need the added help of the diabetic support meetings and guidance from medical. Let me know how you do…..blessings, elizabeth

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@ess77

@babette et al Hello, I was diagnosed w/diabetes when my glucose level was over 300 one day, out of the blue, while recuperating from CHF for several months. I take Janumex and it's pretty well controlled. Don't know why that happened, but several hormones went bonkers. I had other endocrine issues that caused the edema and CHF, now well controlled after a lot of work w/Mayo Clinic adjusting hormone levels.

I don't believe you mentioned seeing an endocrinologist or being under a diabetic specialist of any kind. I was diagnosed by my PCP, prior to my Mayo involvement, who sent me for a short visit w/diabetic nurse specialist for instruction on the what/when/how of diabetic health. It wasn't so great, but got me started.

I should have gone to an endocrinologist. They often have regular diabetic patient instruction, meetings and support. I've never had that help, but think it would be very helpful short and long-term. They offer guidance in controlling your diabetes w/diet, losing weight and all the do's and don'ts and lots of help.

I still need this help today, as I'm not controlling this as well as I want. My diabetes is overseen by my PCP. I need to have a Mayo endocrinologist, but don't at this time.

I can't cook much, so eat from the grocery deli, pre-packaged FRESH meals, delicious and only need heating, pricey but for one it's 2-4 meals and makes a lot of sense. Also, do the smoothie thing, with protein powder, w/no sugar or preservatives or additives. I've simplified my food, even frozen meals w/no preservatives, low sugar, low carbs, high protein. Do watch the sodium tho on the frozen foods….

Don't know if any of this makes sense, but it seems to work well for me at this point. Hope you find the best mix for you. Really think we need the added help of the diabetic support meetings and guidance from medical. Let me know how you do…..blessings, elizabeth

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@babette A quick additional comment:

I can't imagine a stationary bike w/your knee or yoga if you're having weight surgery!!!! I go to a PT therapy pool for my exercise, 2X weekly, script from my mayo neurologist and he said I should use that pool, 94 degrees, the rest of my life. It's truly wonderful! Helps me more than anything I've ever done. The exercise is as smooth and comfy as you can imagine. Nothing hurts…..I get good work-outs, but no pain, lots of working using the water for strengthening and relaxation. It helps every part of my body.

I also, occasionally, use the recumbant stepper that puts no stress on any of my joints…..I have severe arthritis in my joints, can't use bike or upward motion, no reg stepper, am overweight and yoga or other such are out of the question. So, pool, occasional recumbant stepper, easy walking as far as is comfortable and that's it. That's plenty! for me and has helped joints, fibro, muscles/all soft tissue, heart, head….I use my little pink walker and toddle at a slow pace safely.

Anyway, those are my thoughts on getting some good, reasonable exercise for weight and diabetes and everything else…..blessings again and more….elizabeth

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@ess77

@babette et al Hello, I was diagnosed w/diabetes when my glucose level was over 300 one day, out of the blue, while recuperating from CHF for several months. I take Janumex and it's pretty well controlled. Don't know why that happened, but several hormones went bonkers. I had other endocrine issues that caused the edema and CHF, now well controlled after a lot of work w/Mayo Clinic adjusting hormone levels.

I don't believe you mentioned seeing an endocrinologist or being under a diabetic specialist of any kind. I was diagnosed by my PCP, prior to my Mayo involvement, who sent me for a short visit w/diabetic nurse specialist for instruction on the what/when/how of diabetic health. It wasn't so great, but got me started.

I should have gone to an endocrinologist. They often have regular diabetic patient instruction, meetings and support. I've never had that help, but think it would be very helpful short and long-term. They offer guidance in controlling your diabetes w/diet, losing weight and all the do's and don'ts and lots of help.

I still need this help today, as I'm not controlling this as well as I want. My diabetes is overseen by my PCP. I need to have a Mayo endocrinologist, but don't at this time.

I can't cook much, so eat from the grocery deli, pre-packaged FRESH meals, delicious and only need heating, pricey but for one it's 2-4 meals and makes a lot of sense. Also, do the smoothie thing, with protein powder, w/no sugar or preservatives or additives. I've simplified my food, even frozen meals w/no preservatives, low sugar, low carbs, high protein. Do watch the sodium tho on the frozen foods….

Don't know if any of this makes sense, but it seems to work well for me at this point. Hope you find the best mix for you. Really think we need the added help of the diabetic support meetings and guidance from medical. Let me know how you do…..blessings, elizabeth

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I’m sorry if I misjudged your situation, but I assumed since you had been diagnosis with diabetes that you were already under the care of a doctor. Yes, by all means, this should have been your first step.

While having the care of an endocrinologist is often needed in advanced cases, most PCPs are capable of guiding the day-to-day care you need to take (mine is an internal medicine specialist). If you feel you need more care/oversight in your case, ask your PCP for a referral.

Depending on where you live, most areas have a basic care class for food for diabetics and a device testing class (you need to test at least twice a day, more if your on insulin). Again, your PCP should direct you to what care is available in your area.

Additionally, you should have the regular care of other specialists in your area if not already. I’m referring to an eye doctor, foot specialist, urologist, and dental care. Remember that diabetes affects your entire body, so you need to be proactive in your health care.

I myself had only basic diabetes classes, as you learn what works for you. You are in a good place, just starting your journey with diabetes; if you learn to test correctly, eat right, take your medication, and add exercise to your lifestyle as needed, you can manage and count on many years to spend with your grandkids and loved ones.

Most of the above is a given for your situation. If it hasn’t happened, you may need to consider another PCP.

As a side note, one of the serious complications (among many) of diabetes is neuropathy; consider asking your doctor about “Metanx”, which is what I’ve been taking for many years to help prevent this. I believe it is one of the main reasons I still have full feelings in my feet after almost 20 years.

Take care.

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@howardm

I’m sorry if I misjudged your situation, but I assumed since you had been diagnosis with diabetes that you were already under the care of a doctor. Yes, by all means, this should have been your first step.

While having the care of an endocrinologist is often needed in advanced cases, most PCPs are capable of guiding the day-to-day care you need to take (mine is an internal medicine specialist). If you feel you need more care/oversight in your case, ask your PCP for a referral.

Depending on where you live, most areas have a basic care class for food for diabetics and a device testing class (you need to test at least twice a day, more if your on insulin). Again, your PCP should direct you to what care is available in your area.

Additionally, you should have the regular care of other specialists in your area if not already. I’m referring to an eye doctor, foot specialist, urologist, and dental care. Remember that diabetes affects your entire body, so you need to be proactive in your health care.

I myself had only basic diabetes classes, as you learn what works for you. You are in a good place, just starting your journey with diabetes; if you learn to test correctly, eat right, take your medication, and add exercise to your lifestyle as needed, you can manage and count on many years to spend with your grandkids and loved ones.

Most of the above is a given for your situation. If it hasn’t happened, you may need to consider another PCP.

As a side note, one of the serious complications (among many) of diabetes is neuropathy; consider asking your doctor about “Metanx”, which is what I’ve been taking for many years to help prevent this. I believe it is one of the main reasons I still have full feelings in my feet after almost 20 years.

Take care.

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@howardm Love your comments and advice, Howard.

Tell me about Metanx, please. I have serious and growing peripheral neuropathy, I think it was working on me for a couple years prior to diabetes, was diagnosed so not caused by diabetes. I'm using MMJ lotion if I need it on hands and feet/legs, always use lotion of some kind at night, take MMJ 1:1 tincture for feet, legs, overall pain, arthritis, anxiety, sleep help….at night before bed. It's a gift~ helps me more than anything to date, plus robaxin for cramping, cymbalta for fibro and anxiety and requip for RLS…..dopamine help.

I'm regularly on the neuropathy site where a delightful man, John Bishop who's been dealing w/neuropathy for many years, has suggestions and insight. May I suggest you ck that site and @johnbishop to discuss Metanix? That could be a great discussion for all of us!

Thanks, Howard. Blessings to you. elizabeth

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@ess77

@howardm Love your comments and advice, Howard.

Tell me about Metanx, please. I have serious and growing peripheral neuropathy, I think it was working on me for a couple years prior to diabetes, was diagnosed so not caused by diabetes. I'm using MMJ lotion if I need it on hands and feet/legs, always use lotion of some kind at night, take MMJ 1:1 tincture for feet, legs, overall pain, arthritis, anxiety, sleep help….at night before bed. It's a gift~ helps me more than anything to date, plus robaxin for cramping, cymbalta for fibro and anxiety and requip for RLS…..dopamine help.

I'm regularly on the neuropathy site where a delightful man, John Bishop who's been dealing w/neuropathy for many years, has suggestions and insight. May I suggest you ck that site and @johnbishop to discuss Metanix? That could be a great discussion for all of us!

Thanks, Howard. Blessings to you. elizabeth

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@ess77
Jeez Liz, are you going for the Guinness book of world records for the most illnesses?
I wonder if your Neuropathy & Fibromyalgia could be a result of undiagnosed Diabetes?
I understand Fibromyalgia is commonly found in people with diabetes, but more so in people with type 1 diabetes and in people with less well-controlled blood glucose levels. Just a thought.
Hang in there,
Jake

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@jakedduck1

@ess77
Jeez Liz, are you going for the Guinness book of world records for the most illnesses?
I wonder if your Neuropathy & Fibromyalgia could be a result of undiagnosed Diabetes?
I understand Fibromyalgia is commonly found in people with diabetes, but more so in people with type 1 diabetes and in people with less well-controlled blood glucose levels. Just a thought.
Hang in there,
Jake

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@jakedduck1 Oh, Jake! Sounds like it, eh? I nope not…but it has been a crazy road with a lot of poor and non diagnoses. Much I think was caused by medications for epilepsy since childhood. I think my body has suffered because of those and the large amounts of meds.

That's one reason I've been focused the last several years on getting off so many meds. I'm feeling the difference, in energy, thinking w/o fog!!!!! no dementia, less anxiety, less debilitating pain!, better sleep – w/c-pap which may be cause of so many other improvements. Also, more movement, pool, MMJ…Think each reduction in chemicals and each healthy change leads to more improvements?

I'm revamping my life, getting rid of some of this junk. Re diabetes and neuropathy….don't know. My glucose levels weren't high until after the CHF actually brought on by long-term Primary Aldosteronism which caused low potassium for years, caused edema for many years. Sodium levels got wonky. As did the thyroid! Man, it payed havok w/skin, anxiety, heart, thinking, breathing, fainting, weight, hair, nails, and everything else! That little thing affects it all….now resolved, but look what work it took to get there.

Who knows, Jake. I know I loved my chocolate, especially dark choc, as does someone else I know…..but never was diagnosed w/diabetes. Could be….Actually, I didn't begin focusing on all this stuff for real until after the heart hospitalization and the years of mis-diagnosed no treatment MS. At that point, my son got the pain pump, botox and was 'better' so my focus turned to my health. Thusly, Mayo and this lovely journey.

Better and fewer issues is key. ..blessings to you, my friend. elizabeth

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For anyone wishing for more information relevant to diabetes and diet, you may wish to follow the Weight Management blog https://connect.mayoclinic.org/blog/weight-management-1/

Some have expressed interest and/or knowledge with low carb health fat (LCHF) eating. You may wish to join this group on Connect:
– LCHF Living & Intermittent Fasting https://connect.mayoclinic.org/group/lchf-living-intermittent-fasting/

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@colleenyoung

For anyone wishing for more information relevant to diabetes and diet, you may wish to follow the Weight Management blog https://connect.mayoclinic.org/blog/weight-management-1/

Some have expressed interest and/or knowledge with low carb health fat (LCHF) eating. You may wish to join this group on Connect:
– LCHF Living & Intermittent Fasting https://connect.mayoclinic.org/group/lchf-living-intermittent-fasting/

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@colleenyoung Thanks, Colleen. Also, I just received the Mayo Diet Book II that I need to ck out. I ordered it when I joined the Mayo Diet to lose weight….not sure I can go that route myself as I don't cook, but can learn as I go! I do well w/Medditerrarian and Low Carb/High Protein eating….and several small meals daily. If I do that, keeps down the desire to snack on stuff….and have to be better at what I have to snack. Good helpers here…..blessings, elizabeth

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@ess77

@colleenyoung Thanks, Colleen. Also, I just received the Mayo Diet Book II that I need to ck out. I ordered it when I joined the Mayo Diet to lose weight….not sure I can go that route myself as I don't cook, but can learn as I go! I do well w/Medditerrarian and Low Carb/High Protein eating….and several small meals daily. If I do that, keeps down the desire to snack on stuff….and have to be better at what I have to snack. Good helpers here…..blessings, elizabeth

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Good add, Elizabeth. The Mayo Clinic Diet book and/or program are great resources. Here's a good discussion that might be worth reigniting:
– Anyone know about Mayo Clinic Diet Experience https://connect.mayoclinic.org/discussion/anyone-know-about-mayo-clinic-diet-experience/

I'd also like to point out this book from diabetes experts at Mayo Clinic – The Essential Diabetes Book https://mcpress.mayoclinic.org/categories/diseases-and-conditions/mayo-clinic-the-essential-diabetes-book-second-edition.php

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@colleenyoung

Good add, Elizabeth. The Mayo Clinic Diet book and/or program are great resources. Here's a good discussion that might be worth reigniting:
– Anyone know about Mayo Clinic Diet Experience https://connect.mayoclinic.org/discussion/anyone-know-about-mayo-clinic-diet-experience/

I'd also like to point out this book from diabetes experts at Mayo Clinic – The Essential Diabetes Book https://mcpress.mayoclinic.org/categories/diseases-and-conditions/mayo-clinic-the-essential-diabetes-book-second-edition.php

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@colleenyoung
Good book!
My cousin has diabetes and I bought it for him and his caregivers use it and like it very much.
Jake

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@ess77

@colleenyoung Thanks, Colleen. Also, I just received the Mayo Diet Book II that I need to ck out. I ordered it when I joined the Mayo Diet to lose weight….not sure I can go that route myself as I don't cook, but can learn as I go! I do well w/Medditerrarian and Low Carb/High Protein eating….and several small meals daily. If I do that, keeps down the desire to snack on stuff….and have to be better at what I have to snack. Good helpers here…..blessings, elizabeth

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@ess77
Hey Lizzy,
I have a question, if you don’t cook why did you order a cookbook?
As much as I despise cooking if I can cook you can cook. Anyone can throw a salad together, granted its a pain. As you lose weight you become more and more motivated. I lost 90 pounds and I ate candy every day. Now if I can do it you can certainly do it and I didn’t need a cookbook although my doctor did send me to a nutritionist and the amount of food they want you to eat is ridiculous. I don’t think a person can even live on what they want you to eat. I know you need to reduce portions and exercise more @becsbuddy will take care of the exercise. I went to the gym too but didn’t overdo.
That deli junk isn’t healthy. For lunch I had 4oz of chicken (doctor says 3oz (I never did mind worth shucks) half a baked potato asparagus & carrots. I cook in the microwave just in case a seizure should strike. No candy today. talk about suffering!!
NOW, are you going to straighten up & fly right?
Think og the money you can save the deli junk is costly and gas. Although a happy car is a driven car.
Now when are you going to get with the program???
Take care,
Jake

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@jakedduck1

@ess77
Hey Lizzy,
I have a question, if you don’t cook why did you order a cookbook?
As much as I despise cooking if I can cook you can cook. Anyone can throw a salad together, granted its a pain. As you lose weight you become more and more motivated. I lost 90 pounds and I ate candy every day. Now if I can do it you can certainly do it and I didn’t need a cookbook although my doctor did send me to a nutritionist and the amount of food they want you to eat is ridiculous. I don’t think a person can even live on what they want you to eat. I know you need to reduce portions and exercise more @becsbuddy will take care of the exercise. I went to the gym too but didn’t overdo.
That deli junk isn’t healthy. For lunch I had 4oz of chicken (doctor says 3oz (I never did mind worth shucks) half a baked potato asparagus & carrots. I cook in the microwave just in case a seizure should strike. No candy today. talk about suffering!!
NOW, are you going to straighten up & fly right?
Think og the money you can save the deli junk is costly and gas. Although a happy car is a driven car.
Now when are you going to get with the program???
Take care,
Jake

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@jakedduck1, @colleenyoung , @howardm et al… Ok, Jake, my friend….Better sit down and get comfy….

I don't cook because I can't cook. I can't stand for any length of time. I can't lift pots or pans, the arthritic pain in my hands and wrists is excruciating when I do attempt to lift…..no pot is made that's light enough or comfy for my hands. Also, I can't use my thumbs, so no gripping. No cutting or chopping or other prep activities, not even tomatoes or lettuce……can buy pre-cut or pre-made salads, but hard to chew some of salad and have gerd and swallow issues, so lettuce/leafy get caught. No trouble using oven for warming, cooking and microwave of course.

The pre-made meals I get at Publix in Florida are excellent, Jake. No preservatives or additives. Fresh, like fresh chicken breast stuffed with asparagus and gouda cheese, or spinach and cheese, or other such delicious concoctions I cooked years ago. They have limited spices, the ones I choose, so don't upset Gerd/stomach; limited salt for a no sodium diet…..

I think these are a good way for me, as 1 meal, 2 breasts have protein, veggies, dairy and taste fantastic. ! meal w/2 breasts are 3-4 servings for me. Live alone. They also have fresh salmon!!! Delicious!

So, sorry, Jake. This is the only way I've found works for me. I have them delivered with my other groceries. I will begin to go to store soon, as I have the ability. Ordered groceries prior to covid due to weakness and pain. Oh, walking is challenging and painful. . Lumbar/cervical herniated discs, legs/feet pain, neuropathy, arthritis, trouble lifting legs, when tired lifting feet is tough and sluff & stumble, etc.

OK, my friend. I don't like discussing the ways I can't do things. I prefer to celebrate the ways I've figured out to get around the challenges!!! That's the only way I can survive this ridiculous, horrible life and turn it into something I can tolerate and come close to enjoying…..see my point?
Blessings to you ~ I loved meeting you officially on the Spotlight! You're a special person…..elizabeth

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