1. < Brain & Nervous System

Desperate Need of Help for Adult Daughter with Seizure Disorder

Posted by abalthas @abalthas, Feb 2, 2023

My Daughter is 55 and unable to walk. Due to fear of seizures sits,sleeps on floor within 6 ft area.Unable to get her to hosp for treatment,diagnosis,suffers from lack of sleep,shocked awake from horrific dreams. We need help. Her Neur won't treat her any longer because unable to get her to hosp for EEG - Medicaid won't cover in hospital stay for diagnosis/treatment

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

abalthas | @abalthas | Feb 8, 2023

I have exhausted all of these options but thank you

REPLY
Chris Gautier OR Santosha | @santosha | Feb 8, 2023
In reply to @abalthas "Hi Santosha, Unfortunately I am unable to transport my daughter - she had a Penn neurologist..." + (show)
@abalthas

Hi Santosha,
Unfortunately I am unable to transport my daughter - she had a Penn neurologist but she stopped treating her because I couldn't get her the EEG. Even stopped prescribing her Lamotrigine so I needed to ask primary care doctor to do; otherwise she would have no seizure meds. I have never heard of a psychoneurologist but that sounds like it would be helpful. I appreciate the kind words

Jump to this post

Hi @abalthas
I was referred to this neuropsychologist in 2019 by my doctor for a Neuropsychological Assessment and stayed with her. I am sure you also have this kind of psychologist in the United States. Such professional support can be very helpful!
Santosha

REPLY
Leonard | @jakedduck1 | Feb 8, 2023

@abalthas
May I ask what your transportation problem is?
Jake

REPLY
1 reply
abalthas | @abalthas | Feb 8, 2023
In reply to @jakedduck1 "@abalthas May I ask what your transportation problem is? Jake" + (show)
@jakedduck1

@abalthas
May I ask what your transportation problem is?
Jake

Jump to this post

My daughter would have a seizure if someone came for her which is my issue. Then I am left to deal with this which is why I am/was unable to move her.

REPLY
hunby2blas | @hunby2blas | Feb 8, 2023
In reply to @jakedduck1 "@abalthas @colleenyoung suggested a social worker. They can be very helpful. Calling Medicaid may offer some..." + (show)
@jakedduck1

@abalthas
@colleenyoung suggested a social worker. They can be very helpful.
Calling Medicaid may offer some suggestions you haven't thought of. My handicapped cousin had Medicaid and they provided him transportation. They even paid to have him transported to my house, a 600-mile round trip.
If you live in an area that provides city bus service, buses are often equipped to accommodate wheelchairs.
There are also volunteer groups providing medical transportation.
Another helpful option might be to join Nextdoor. It's a computer program/app and provides a way to receive trusted information, give and get help, get things done, and build real-world connections with those nearby. People are very willing to help. I see it all the time.
The Department of Aging may have options as well.
Have you talked to your doctor regarding the availability of transportation needs?
Good luck,
Jake

Jump to this post

it sounds like you need to contact a social worker to find out her benefits , a social worker that deals with these cases and her transportation for medical visits' then try to aboutget a local dr to treat her seizure disorder at a near by hospital. in one of the replys it mentioned about getting a social worker how to get in touch ,i would take that lead. ask the social worker also about seizure dr that accepts medicaid/medicre clients, you definitely need a social worker to organized these issues for you

REPLY
View MoreView Less
Please sign in or register to post a reply.