Dercum’s Disease: Let's create a support group

Posted by vowelmistress @vowelmistress, Jun 13, 2022

I am having pain in my feet and ankles. I do have dercum’s and I am wondering if the lipomas in my legs can cause this? Also are there any surgeons in the Eau Claire area who specialize in liposuction for dercum’s patients?

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@ellenbret

Yes, that's the article I'm referring to. I sure hope it makes it through trials and available soon!

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Oh, and thank you for the Mayo docs info!

REPLY

Hi, hope I'm doing this correctly!!
I am fortunate, having only one (not many!) burning lump. It was diagnosed as lipoma over 10 yrs ago. Dercum's diagnosis was only a few weeks back as I was just checking that lumps were stable and not sinister. Rheumatologist was asking weird questions about cognitive function, fatigue, etc. This is something I have had concerns about for some time - but it seems glossed over in the Dercum's literature, which is lump focussed. I've got the lumps, but its the other symptons that are causing the problems!
Not sure how it all fits together, and I'm still new to Dercum's as the explanation of a wide range of symptoms.
Any thoughts welcome.

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