Declining Chemotherapy

Posted by alisa1 @alisa1, Apr 16 9:28am

Hello. I was diagnosed with invasive ductal carcinoma of the right breast. I chose to have a double mastectomy with reconstruction. The oncologist has recommended 4 rounds of chemotherapy.
Has anyone chosen to opt out of chemotherapy for Stage 1, triple negative breast cancer or greater stage/other form of breast cancer?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Here is a pretty active conversation about triple negative breast where you could connect with others with all stages of this more difficult type of breast cancer.
https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer/
I would think a visit to this page might bring some answers and support.
On another page I noticed you have a few weeks to decide. Have you had your surgery yet?

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@auntieoakley

Here is a pretty active conversation about triple negative breast where you could connect with others with all stages of this more difficult type of breast cancer.
https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer/
I would think a visit to this page might bring some answers and support.
On another page I noticed you have a few weeks to decide. Have you had your surgery yet?

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Yes, I have had the double mastectomy and going through the reconstruction process right now. Chemotherapy begins following this and it will be the 1st or 2nd week of May for that to begin. Thanks for your response and this resource.

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I had chemo and radiation after a lumpectomy. the chemo made me feel awful until the Taxol was reduced by 20 percent. 6 weeks of radiation was actually easy except for being time consuming. That happened when I was 79. I'm 82 now and my blood work showed no sign of cancer and the oncologist said he didn't expect it to come back.

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Hi Alisa,
Yes, I was diagnosed with 'invasive' and also 'in situ' ductal carcinoma Stage III-A in one breast. I did the double mastectomy and immediate reconstruction. I chose not to do the chemo, the radiation nor take the estrogen blocker.

I was told that the cancer will probably return sometime in the future, but probably not in my breasts. I said, "How will I know?" She replied, "Well, you'll just know something is wrong." And, "Come back and see me then."

Because of my research, I opted to utilize the nutritional, the herbal, the off-label products taken very specifically to keep myself in prime defensive posture, and have have compiled a gigantic database of cancer research studies, anecdotes, trials, etc. I know of many things being trialed, and if I can access them without an Rx, I order them for myself and try them and make notes as to how I feel and whether I feel they were beneficial.

I also take a shoebox full of specifically selected vitamins/supplements, and herbs to prevent or prophylactically rebuff cancer.

Now, even though I had an extremely aggressive cancer, I am coming up on 6 years of 'no return of cancer' which I attribute to what I have been taking under my own guidance.

Good luck. Listen to your intuition. That has helped me.

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I am certain after having this diagnosis, I have become a bit paranoid at any ache or pain in my body. However, I am going to have to make a decision this week and notify the oncologist. My heart, soul, mind, and body are clearly saying no to chemo. I have literally awaited 30 days for a divine sign that will let me know if chemo is the answer.
I have had another test ran that will be a determining factor in my informed decision whether or not to proceed with chemo. This is a tough one for me.

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Not an easy decision to make, especially when you know the therapy you may receive will make you feel crummy. My personality guided me to throw everything at my stage 3 that was/is available. 5 years from now I want to know everything that could have been done was done. But I know everyone feels differently and deserves support for their decisions.

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@mossa

Not an easy decision to make, especially when you know the therapy you may receive will make you feel crummy. My personality guided me to throw everything at my stage 3 that was/is available. 5 years from now I want to know everything that could have been done was done. But I know everyone feels differently and deserves support for their decisions.

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Yes, I understand the follow through on knowing you're doing everything you can to remedy this. I had 2 friends that said they felt reassured in completing the chemo and radiation treatments that were recommended to them as well. My spiritual advisor said, "stay the course!" Meaning from start to finish and not to stop midstream. I will do follow ups with the oncologist every 4 to 6 months. Thanks for your response.

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@casualobserver

Hi Alisa,
Yes, I was diagnosed with 'invasive' and also 'in situ' ductal carcinoma Stage III-A in one breast. I did the double mastectomy and immediate reconstruction. I chose not to do the chemo, the radiation nor take the estrogen blocker.

I was told that the cancer will probably return sometime in the future, but probably not in my breasts. I said, "How will I know?" She replied, "Well, you'll just know something is wrong." And, "Come back and see me then."

Because of my research, I opted to utilize the nutritional, the herbal, the off-label products taken very specifically to keep myself in prime defensive posture, and have have compiled a gigantic database of cancer research studies, anecdotes, trials, etc. I know of many things being trialed, and if I can access them without an Rx, I order them for myself and try them and make notes as to how I feel and whether I feel they were beneficial.

I also take a shoebox full of specifically selected vitamins/supplements, and herbs to prevent or prophylactically rebuff cancer.

Now, even though I had an extremely aggressive cancer, I am coming up on 6 years of 'no return of cancer' which I attribute to what I have been taking under my own guidance.

Good luck. Listen to your intuition. That has helped me.

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Casual observer,
I am very interested in what youve been doing.
Are you willing to share the supplements youve been taking, nutrition, books that have made profound resources and any other resources you have found helpful
Thank you.

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@alisa1

I am certain after having this diagnosis, I have become a bit paranoid at any ache or pain in my body. However, I am going to have to make a decision this week and notify the oncologist. My heart, soul, mind, and body are clearly saying no to chemo. I have literally awaited 30 days for a divine sign that will let me know if chemo is the answer.
I have had another test ran that will be a determining factor in my informed decision whether or not to proceed with chemo. This is a tough one for me.

Jump to this post

I agree with you, tho ive had chemo 10 years ago. I now have a reoccurrence.
I am in exemestane and have not opted for the meds yet due to their possible heart side effects.
I believe God created the body to heal itself. Saying that Im not against pharmaceuticals because chemo, a double mastectomy and radiation kept me at bay.
However, i believe firmly, that STRESS has brought on this reoccurrence. I also belueve it was STRESS that brought on my initial breast cancer as no one in my family has ever had it.
If your heart, body and soul are clearly guiding you, follow your intuition and strengthen your immune system as you are.
I offer a name of a doctor you can research who has been treating my friend. Its expensive and requires a lot of work, but will become routine.
Dr. Connealy.
https://www.connealymd.com/

FYI: My father was treated for his bladder and prostate cancer at Mayos in Scottsdale. They did an impressive and marvelous job and he was healed.
Im glad they are open to integrated medicine.
More facilities should be looking at real nutrition and herbs, vitamins, etc. as they DO work.
Covid has easily proven that.
Those that took natural remedies that got it did VERY well as those who used preventative measures and did not get it.
Blessings to you and keep praying for Gods wisdom.

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Hello. My oncologist provided me with some studies specific to Stage 1 triple negative invasive DCIS. I cannot recall the specific studies, as they were provided over a conference call. However, I have been assigned a nutritionist who states the Mediterranean diet is the best to follow for cancer patients. Supplements include a daily vitamin, magnesium, vitamin C, vitamin D (optional with K), and a good probiotic. Also, look up the Cancer Freedom Program with Dr. Amy (https://amydeepharmd.mykajabi.com/welcomerecipes).
Again, this is a personal choice. I am a new thriver and suggest you research and speak with persons who have been through this greater than 5 years.

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