I am looking for answers to what anyone has found to successfully treat my pain from fibromyalgia. Getting desperate.
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WHat about heating pads or pads that can be zapped and then carried around?
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@merpreb They work sometimes, but I prefer to bundle up in layers, and peeling those same layers off in a while, then replacing them when my body requests it.
Jnatsky, what is PTHEP?
@irr4et – I read your post where you mentioned that pain causes 24/7 rise in cortisol. That’s exactly what I have been saying and nobody understands- not even my doctors. It lasted several years for me because of constant intestinal pain or discomfort. The result has become extreme fatigue – such as in burnout- and my old energy will never return.
I also have IBS and also suffered years of pain from an unusual GI autoimmune illness in addition to another rare illness- MALS (restricted intestinal blood flow causing extreme pain with eating).
Writing this I’m getting quite emotional and angry that it took so many years to get diagnosed.
I feel for you Ingegerd. Please tell us the therapy for and how this intestinal problem is being treated.
@irr4et The intestinal problem was finally treated with immunosuppressive Imuran 5-6 years ago. The other problem, MALS, was treated surgically by releasing the ligament that put pressure on the celiac artery, allowing good blood flow again.
Cymbalta has worked for me where other meds have not.
I have been taking Cymbalta for years. It helps me manage the pain. When I over do it physically however, only rest and hot bath/showers for a few days is needed. Sometimes certain foods I hear triggers fibro pain for some people so if you haven’t looked into that it might be something to consider as well.
@whattodo which foods should be avoided?
That is a good question. I think it depends on the person but I found them whenever I cut out anything with gluten, I had A LOT less aches and pains. I have heard some people find that chocolate and dairy cause flair ups. For me gluten seems to be a trigger. That said, I live with others who I have to cook for so I have a hard time going gluten free apart from a few months at a time. When it gets really bad, back I go on gluten free.
Hope this helps!
I think different people have differing experiences. Food makes little to no difference for me, but rest and exercise do. If I am too inactive, the pain flares (or maybe I just notice it more.) And if I get overtired, pushing myself hours after I should quit, I get a flare.
@sueinmn My case seems to be like yours, Sue. And, I know that I feel better when I move around, get outside for some fresh air, and consciously take care of myself. It is such a fine line, don't you think? What worked last week may not be the same this week, type of thing. And let's not even go to the emotional/mental aspect of it all!
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