Diagnosed with DCIS: How do I decide on treatment?

That injection was so painful, I screamed, burst into tears and jumped off the table.
That breast was already sensitive after two rough biopsies, black and blue breast and large hematoma.
I thought it was barbaric to give such a painful shot with no anesthetic at all.

Ductal Insitu is in the ducts
Invasive
Means it spread
To the canals ( that’s what I hav)
My Dr. Told me calcifications
Mean nothing.
An MRI picked up a cancerous cyst the Ultrasound and Mammogram
didn’t. I get
My results of my lymph on Tues
I had 3
Tumours removed and an augmentation., Surgeon and Plastic surgeon directed
Me away from a
Mastectomy to Skin saving
Lost
Bld supply areola& nipple
Necrosis but now circulation is returning after bad post
Op infection & still on IV antibiotics
I’m here for anyone
It’s not really a journey more of a nightmare
Try hard to Stay strong

I am fearful of the actual injection of the dye which I have read is quite painful. I also have a large hematoma (still present from my biopsy done in Nov. 2022) which concerns me in regards to having an injection in that area. I have also read studies that the procedure is not really necessary unless the tumor is above 3mm and/or you are having a complete mastectomy. The side affects are also a concern of mine as they can be permanent. Frankly, I am simply scared to death! My surgeon didn't have any patience when I expressed my concerns and told me I was too full of anxiety and I wouldn't heal properly if I don't get a grip."

Sure! Radiation is 5 days a week, M thru F. I had 21 treatments. The last 5 were "closeup" - so I was on my back. The rest were face down - with the boobs hanging down. Actually I preferred the ones where I was on my back. The actual treatment is just a few minutes. The Terrible fatigue hit me after about 2 weeks. So you have to be prepared for that & baby yourself. If you want a nap - take it! I did find it tedious driving to the hospital each day. Boy, but ringing that bell after my last treatment was so great!! I had 2 friends go with me & we celebrated with a lunch that day. Where I got my treatment - I saw the radiologist every Friday. I used Aquaphor (use what your Dr. tells you) - use it on your nipple too - not just the area involved. I used a certain sleep shirt - as the Aquaphor is very greasy. When I was done never thought I'd get that shirt clean - but Dawn (original blue) finally took out that stain. I didn't suffer from skin burns - but some women do. Mine was also on my right side - if it's on the left, I understand this may affect your heart. Talk to your radiologist about this. My poor nipple will never be the same on the right. Looks like a brown piece of leather.

Will you share with me how radiation was? And when they say radiation is every day is that include the weekends too?

Yes - I had more than 1 MRI guided biopsy. It's kinda like "Battleship" the game - they put a grid up next to your breast - then go to the location like: A5 using the MRI. I thought it was more painful than the ultrasound biopsy. A robot did the actual needle stick - I assume the robot got the "depth" correct as well.

Mine turned out to be IDC - so it was invasive. I did a lumpectomy With 21 rounds of radiation, My OncoDX test was 22, so I did not need chemo. I had no lymph node involvement. Wishing you all the best.

I had my lumpectomy on August 16th, for DCIS. I had a lot of swelling and drainage, and was taken care of by public health nurses, who were in constant contact with the surgeon. The surgeon explained that due to the type of tissue in my breast , he had to do more work than normal for a procedural lumpectomy.I was told my lumpectomy was major surjery and I had 6 weeks of restrictions instead of 3. My next visit with him was exactly 3 weeks later. He did not get enough margin for clear pathology and a hematoma formed in the site. He said the hematoma needed to be removed and more tissue for the pathology report needed to be taken a.s.a p.. I had the surgery that same night. I am 100% better but now very anxious .I go back for pathology tomorrow morning and have appointments already booked for both radiation and chemo doctors. I received that call about those appointments yesterday. I hope my visit tomorrow gives me clarity. . . . .

I had my lumpectomy on August 16th, for DCIS. I had a lot of swelling and drainage, and was taken care of by public health nurses, who were in constant contact with the surgeon. The surgeon explained that due to the type of tissue in my breast , he had to do more work than normal for a procedural lumpectomy.I was told my lumpectomy was major surjery and I had 6 weeks of restrictions instead of 3. My next visit with him was exactly 3 weeks later. He did not get enough margin for clear pathology and a hematoma formed in the site. He said the hematoma needed to be removed and more tissue for the pathology report needed to be taken a.s.a p.. I had the surgery that same night. I am 100% better but now very anxious .I go back for pathology tomorrow morning and have appointments already booked for both radiation and chemo doctors. I received that call about those appointments yesterday. I hope my visit tomorrow gives me clarity. . . . .

My next surgery is on September 28th and hopefully I get clear margins.

I am also nervous about doing 4 weeks of Radiation and the side effects of Tamoxifen. Ugh, this is just a lot to have to think about!!

Are you all healed from surgery? When do you start your Radiation?