Daughter, 45 anaplastic thyroid cancer. Had surgery, chemo, radiation.
She now has a tracheostomy and feeding tube. FT is finally going ok. But the trach causes Phlem that she has to constantly clear and spit out. It is the bane of her existance. Any one else dealt with this same thing?
Interested in more discussions like this? Go to the Thyroid Cancer Support Group.
How are you doing now?
hi av8r525, so sorry to hear that. i guess that is why they want to do this neck and soft tissue ultrasound so they can see how the lymph glands look.
are they going to give him the radioactive iodine? that is what they scheduled for me.
hi av8r525, so sorry to hear that. i guess that is why they want to do this neck and soft tissue ultrasound so they can see how the lymph glands look.
hi av8r525, i do hope all is well with your son. this is what i have. it is scary for me as i am up in age, however, the dr. said they do not look at age. i would love to hear how he is doing.
Thank you, will follow both. He was found to have metastatic carcinoma upon removal of his thyroid.
@av8r525, I hope your son's surgery went well last week. Here are a couple of discussions where you can connect with others who have papillary carcinoma of the thyroid:
- Life after total thyroidectomy after papillary cancer https://connect.mayoclinic.org/discussion/papillary-thyroid-cancer/
- I have Papillary thyroid cancer that has spread: Is there help? https://connect.mayoclinic.org/discussion/life-after-total-thyroidectomy-after-papillary-cancer/
My 38 year old Son is having surgery the Friday 11/11 for papillary carcinoma of the thyroid, would be curious to hear others experience with same.
Hi Jeanne, different hospitals will have different names, but often in cancer centers there is a nurse who oversees the management of treatment side effects. You might also consider asking for a consult with palliative care. They specialize in symptom management.
I think it would be helpful to know what type of chemo she would be getting to help make your decision.
Hi, thank you for the information. You’re lucky you have no problem swallowing. Hopefully my mom’s swallowing problem goes away and be able to eat normally. Prayers🙏
Hi Colleen. Thank you for the reply. She doesn’t have a symptom nurse. I didn’t know about that. The doctor didn’t tell us yet what type of chemo and radiation she’ll be getting. They’re waiting for us to make the decision. They suggested not to wait too long. They told us radiation is 5 days a week, 30 minutes each day for 7 weeks. Chemo is once a week for 7 weeks also.