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Life after total thyroidectomy after papillary cancer

Posted by @cancerbegone in Cancer, Jul 18, 2011

My Endo seems to think I am a nut case and will not recognize the emotional and physical issues I am suffering with since starting Synthroid. Yet, when I check on various websites, I see that there are many people who suffer from anxiety, depression, sleep issues, aches....and a whole host of physical problems as meds are adjusted. My endo keeps saying I must just be worked up about about the diagnosis of cancer! I really don't think that is it. My cancer is very curable, and I have not suffered from these issues in the past. I just don't know what do do. My family med doctor agrees with me, but my thyroid specialist just thinks I'm a headcase. What is your experience?

Tags: Thyroid cancer, sythroid, endocrinologists


Posted by @shoffman1, Jul 18, 2011

I'm sorry about your thyroid and I don't think I have the same issue as you. I am new to the thyroid, my daughter just got diagnosed with hypothyroidism. Those were the same symptoms my daughter told the doctor so I think you have true symptoms. Hope this helps!


Posted by @terri, Jul 18, 2011

I think you need to find a new endocrinologist. You need to find a doctor who respects you, who will listen to your concerns and continue to search for answers to your health issues. I had to go to an alternative doctor who was willing to try natural thyroid hormone and time released T3. He was willing to think outside the box and he definitely encouraged me to participate in my own treatment by allowing me to tweak my own dosage until I felt right. He empowered me. And he also finally figured out I had another health issue that was making me sick--hyperparathyroidism. Have you been checked for parathyroid issues? You had your entire thyroid removed--were your parathyroid glands harmed during this procedure?

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Posted by Anonymous-33d0fba4, Sep 28, 2011

Hello...can i ask which doctor treated you at Majo? Or, if you know anything about Dr. Morris? Thank u...


Posted by @cancerbegone, Oct 4, 2011

No, I am sorry. I do not know dr. Morris. I am finally feeling more human, but it has taken 8 months. I hope you are faring better!


Posted by @tinam, Nov 11, 2011

I was diagnosed with hyperparathyroidism in May 2011. I went in for a resection of an adenoma of my right lower parathyroid. The surgeon could not identify my parathyroid on the lower right so he took out the upper right to make sure he was getting the right tissue match for what he resected. He also found I had a large papillary carcinoma tumor so then resected the whole thyroid on the right. It was a difficult surgery and I had pretty painful recovery, lost my voice and am just now getting it back to a normal status. I still cannot sing or speak in high tones. My surgeon could not find a lower left parathyroid and thinks we should not resect the left side. My oncologist, a second surgeon, and my endocrinologist all think I should have the left side resected and have the RAI treatment and scan as the tumor was multifocal and had metastasis in one lymph node. I am terrified to have the other surgery for fear of losing my voice and destroying the one remaining parathyroid. I am adjusting 'okay' on the synthroid but still have some issues which are difficult to assess if they are parathyroid or synthroid related. I feel lost in the crowd of the providers making opposite recommendations to me. I am in Alaska and wonder if I am getting correct recommendations from either side. Can anyone provide input? Thanks so much.


Posted by @strongenough2011, Jul 9, 2013

i know it is not the same but i take Armour Thyroid...hardly any side effects...been on it for almost 3 years now...still have to get it adjusted often but i have found it worked better than the othes ones....hope this helps...

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