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Anyone else on Daraxonrasib (RMC-6236)?

Posted by howleegirl @howleegirl, May 8 5:59am

Waiting for the approval for my husband to start daraxonrasib. (the new and exciting drug just fast tracked by the FDA) Doc says he's a great candidate for this drug. Anyone else on this? I know about the awful rash you get from seeing the senator on TV. Doc has also styopped all treatment since April 11th. THAT kinda scares me?

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valerina30 | @valerina30 | 6 days ago
In reply to @mimimmx "@valerina30 Until my cancer starts to progress. In the clinical trial I am in, if you..." + (show)
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@valerina30
Until my cancer starts to progress. In the clinical trial I am in, if you have 20% growth if your tumors, you are required to discontinue the trial and medicines. I am hopeful I will be in the drugs for a long time into the future. I am aware of trial participants who have been in Daraxonrasib for well over three years.

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@mimimmx thxs an good luck!

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joeseah | @joeseah | 5 days ago
In reply to @mcoplien "@mcoplien Mike was approved for compassionate care on 8/6 ... but it did not come fast..." + (show)
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@mcoplien Mike was approved for compassionate care on 8/6 ... but it did not come fast enough. He is now in end of life care and will likely pass away today 🙁

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@mcoplien My thoughts and prayers

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witchypooy | @witchypooy | 5 days ago

FDA approved Daraxonrasib today for anyone, anywhere. No more qualifying. Just get your doctor to prescribe it. FDA was 5 months ahead of schedule. Read the WSJ or the NYT story today to see why they went so fast.

There are new trials now exploring combining the "pill" with chemo at various levels to see what the best combo should be. Your doctor will have to on top of it to get it right for you.

No more waiting, no more lists, just get your doctor going on it.
By the way, it is estimated it might cost $1000/ month for the pills now that it is approved. The fed gov will have to step in and provide some relief to medicare patients.

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BeInTheMoment | @mcoviello | 5 days ago
In reply to @tomrennie "@ljojimo Others have had some success minimizing side effects by taking a reduced dosage or by..." + (show)
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@ljojimo Others have had some success minimizing side effects by taking a reduced dosage or by taking a short break in treatment. Did the NP offer those suggestions?

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@tomrennie yes my mom had to take a two week break to bring her lab levels back up. She’s now on a reduced dose of 200mg and it’s made all the difference for her. Breaks and a reduced dose seem very common.

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Turkey, Volunteer Mentor | @tomrennie | 4 days ago
In reply to @mcoviello "@tomrennie yes my mom had to take a two week break to bring her lab levels..." + (show)
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@tomrennie yes my mom had to take a two week break to bring her lab levels back up. She’s now on a reduced dose of 200mg and it’s made all the difference for her. Breaks and a reduced dose seem very common.

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@mcoviello That's great. I am glad that the dose can be altered as needed to help manage side effects. Please keep us posted on her progress. Thanks.

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