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Daily Migraines - How do we function?
Medications, PT, sound baths, massages, the ice gel cap helmet thing, occasional fevers. The vice grips tightening on the temples. The thunder claps through the top of the skull. The bludgeoned feeling at the back of the head. The nausea - oh god the nausea. And the advice is to eat well and go for a walk and don’t overdo do it on the ibuprofen, which might as well be tic tacs at this point!
If any of this rings a bell or resonates, please join me in this conversation on how to survive and function with these symptoms and headaches as part of our lives. Granted, I’ve had two sinus surgeries for sphenoid sinusitis in the last year and an infection for meningitis, but the migraines remain and continue to develop the cruelest symptoms.
I need help understanding this and knowing I’m not alone. All I’ve got in my arsenal is rizatriptan and Tylenol #4 oh and topamax.
How about you?
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@jnhuver Have you ever talked to a neurologist about taking Botox injections? You get them every three months and they control the migraines better than any other medication they have had me take, and I have had no side effects other occasional mild headaches. I’ve been getting Botox for 25 years now, and they have literally saved my life. I had intractable severe migraines for over a year straight. So many meds tried and failed with some not so pleasant side effects. Even tried cervical traction with no relief. Finally my PCP referred me to a fourth neurologist - who examined me and told me if I could handle a series of injections to my upper back and neck, then I could leave the office with no headache. I didn’t believe him, but was willing to try anything. The diagnosis was cervical dystonia, which is progressive if untreated - symptoms include severe headaches which are constant, balance issues, and brain fog, and muscle spasms in the back and neck. He only gave me a block to the nerves affected at first, and the results were immediate and unbelievable. The block only lasted for several days, but when given the Botox the relief lasted almost three months. It was incredible to wake up with no headache or a stiff neck and upper back and to feel that good all day. I’ve been on Botox for 25 years now, and have very few breakthrough headaches. Even when I do get a headache, it is never of the intensity that migraines would cause. At the end of the Botox cycle- 3 months- I may have 7 to 10 days of migraines as it’s wearing off, but to have most of those months headache free - priceless!