Dad getting diagnosed.

Posted by daisybrains @daisybrains, Jul 6, 2025

Hi. My dad is in the process of getting diagnosed with pancreatic cancer. Went in to the ER 1 week ago for under rib pain and a CT of his abdomen showed a large tumor on the tail of the pancreas that had attached itself to the spleen. Also, something seen on the kidney and with two small spots seen in his liver. Devastated to say the least. He saw an oncologist the next day while in the hospital who just said to wait and see after biopsy results and where to start. My mom and him are being so hopeful and positive while my sister and I are an absolute mess. My dad has looked up very minimal. He said he's going to do whatever it takes whether he needs to be lit up or sliced and chopped. I don't have the heart to tell him it's going to be stage 4 and probably inoperable. My mom said we don't know that but all I've seen online is so grim. He goes for a CT biopsy of his liver tomorrow instead of the pancreas which I don't understand how they can get all the information they need from that. His first oncology appointment is the following week. I feel like everything is taking so long. Meanwhile he is just at home looking and acting like how I've always known him. I just can't stop myself from reading and looking stuff up online. My mom is waiting for the oncology appointment to get the referral to John Hopkins which is nearby to us. This board is one of the few places online that gives me a small amount of hope.

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

Profile picture for bradthompson88 @bradthompson88

https://clinicaltrials.gov/study/NCT06381154
My take on clinical trials and research trials is that while I want the benefit of a successful trial, even if I don’t receive one, I want the data to help researchers for future PanCan patients. I want something good to come from something so horrible.

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Agreed. I'm hoping my time at the NIH and the aggravation of all those trips from NC to MD my have helped in their research even though my trial was unsuccesful. Right thing to do if a person is up to the traveling in my opinion.

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Profile picture for bradthompson88 @bradthompson88

You’re very kind. But, I’m sure there are plenty like me. Maybe it is part of wanting some control of the uncontrollable. I asked if I could get a recording of the light hitting the tumor on the trial. Would love to see it smoke or boil or something….😊

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I'll find out if I'm a candidate for SBRT on the 17th of July. If so, I'd also like a video of these two remaining tumors on my liver and pancreas dying a horrible, grisly death. 🙂

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Profile picture for 56pan @56pan

I'll find out if I'm a candidate for SBRT on the 17th of July. If so, I'd also like a video of these two remaining tumors on my liver and pancreas dying a horrible, grisly death. 🙂

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I may not have a video, but they just have been hurt because feels like I got punched in the sternum. While I do hurt, I feel good that I punched back. Keytruda tomorrow!

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