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Cushing's Maybe... I need help!!!

Posted by @endofmyrope in Diabetes/Endocrine System, Apr 10, 2013

I am so tired of being sick and tired. For years now my family and I have watched and felt me deteriorate. I am now a huge bubble of what I used to be. Swollen all over, fat up top, buffalo hump, supra-ventricular fat pads, horible stretch marks all over. Red face which is now forming little vericose veins. I haven't been able to wear my wedding ring for 3 year. My shoe size has gone from 7 1/2 narrow to 8 wide. I hardle ever eat. I should not be fat. I have crushing fatigue ALL the TIME!!! I have a sleep disorder, multiple arousals during the night so I get no deep sleep. I have hypnogogic hallucinations and sleep paralysis, not to mention dreaming bad dreams ALL night EVERY night. I have tachycardia. RHR 90-110 all the time. I went to an ENT today for swollen glands and my BP was 130/90. I usually have a dastolic around 70.All I want to do is sleep. I am weak and have no energy. I cna't even get my house cleaned anymore. I am missing out on my kids lives. I have been thrown from doctor to doctor. I have been diagnosed with SR-MDD and anxiety. I am on meds (no steroids). I have migrains all the time about 4-5 a week. I was told today by the ENT that he sees nothing alarming with my swollen glands, he said that I have a lump of myositis? at the base of my skull (inflammation of muscle fibers). Check back in 2 months. My PCP has ordered a complete metabolic panel, checking for mono, thyroid, and cortisol levels. I have all of this in the past. All inconclusive. But over the past year my body shape has changed DRAMATICALLY! And my energy level is CRAP. And I feel sick ALL THE TIME!! I have fever spikes throughout the dday. I am normal temp then BAM 101! Then back down. I am so freakin frustrated and sick of being told "nothing is wrong with you!" They say diet and exercise. Well I have done that, Weight Watchers, Atkin's, Cabbage Soup Diet, Jenny Craig. Jogging, recently P90X with diet. I will lose about 6-8 pounds and it comes right back. I used to have a waist with more fat distributed in my hips and butt. This past year my thighs and but have shrunk and I have become a fat blob up top. I am humiliated. This change occured while I was jogging 2 miles a day and drinking a ton of water. I don't know what to do. I feel like I am rapidly falling apart. I am afraid if someone doesn't take me seriously and figure out what is going on I will be dead soon. I want to LIVE AGAIN! I WANT TO WATCH MY GIRLS GROW UP! I WANT TO LIVE A LONG HEALTHY LIFE WITH MY HUSBAND. I NEEEEEEED HELP!!!! SOMEBODY PLEEEAAASE HELP ME!!!!! PLEASE!

Tags: womens health, Other


Posted by @wimbledon, Aug 22, 2013

I'm new to this site and happened upon your post. I feel so bad for you. I can relate to feeling exhausted all the time, weight gain, no energy, feeling hot throughout the day and no one figuring anything out. I've been told to lose weight as well. I can hardly crawl out of bed, let alone get out and exercise hard enough to lose weight. The scary thing is when I have testing it usually is also inconclusive, so then I get the doctor telling me again to stretch, exercise, etc.

I hope since the time you posted that you have gotten some answers and are on the road to getting your life back and enjoying your family.


Posted by @michiganmom922, Aug 24, 2013

I too just joined and read your post. We are going through the exact same thing with my 15 year old daughter. She has just been accepted to be seen at Mayo in October. Do you get sick easily? Especially when exposed to someone with a cold, etc.? I ask because this is another symptom that my daughter has. The thing about your post that really hit me is the fevers. My daughter is exactly like that. She'll be fine and then her cheeks will get red. She'll take her temp and its 99.9-101. She also has the migraines. Have you got anything conclusive in the last of your doctor visits? I wish you well. I know this has been so hard on her the last 2 years I wouldn't wish this on my worse enemy.


Posted by @lyndajay, Oct 22, 2013

To I need help---- I can relate to some of your problems but not all. I too am touch by your plight. I have just started reading a book called "wheat bellies" that describes all of your symptoms as being wheat intolerant. I have nothing to judge this from yet except that a friend swears by it. It can't hurt to read it so you might want to do that. I am going to give it a try. Lynda


Posted by @endofmyrope, Oct 22, 2013

I am so sorry I missed these posts till today. I have made some major changes since my first post and have had some improvements, and also some disappointments. I got really tired of going to the doctor so I made all the changes I could. I have cut out almost all processed food from my diet, and I drink mostly water now. I also got off all prescription drugs. I was on antidepressants, anxiety meds and sleep meds for the severe depression, anxiety and sleep disorder. I have been sleeping great and am dealing with my lows. I have lost 20 pounds and still have a lot to go. I do think I have some food allergies because after making these changes, my heart rate normalized, but the other day I went to the doctor about an earache after eating out for the first time in two months and my heart rate was 128. He wanted to do an ECG but I said no... Cuz he wouldn't find anything wrong with my heart... I have had ECGs before... My "heart" is not the problem. The disheartening thing is the ongoing swollen lymph nodes, especially by my left ear... And now the earache I have had for the past month. That node has been swollen for over a year. I have now been to the doctor 4 times in the past month. He said I had the worst looking ear he had seen in a long time. Yes, I get sick VERY easily. My blood work continually shows high WBC even when I am not noticeably sick. I am still trying to figure all this out. But even a little improvement is something right? So I am taking that as a positive.

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