Any experiences with Cryoablation for renal cell carcinoma (RCC)?

Posted by mb4414 @mb4414, Sep 18, 2022

New diagnosis of RCC and am considering Cryoablation. Does anyone have experience with this treatment?

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@sonshine161

I had a similar situation. A mass on my left kidney that we surveiled for a couple of years . During that time we watched it grow from 1cm to 2 cm. My son is an interventional radiologist in Portland, OR and he recommended an ablation be done by a classmate of his, Dr. Ryan Kohlbrenner, at UC San Francisco. I had it done about 2 months ago. They froze it to kill it. The procedure had no pain and no recovery time. They covered the entry point with a band aid. The process to get a biopsy and to ablate it were the same so we did both at the same time. I would suggest calling Dr. Kohlbrenner for a referral. Once the mass gets larger than 4 cm it requires more of a surgical procedure. LMK if you have any more questions.

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Thank you so much for the referral. I will call him. I am on the east coast but this is worth the trip!

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My son is an interventional radiologist who went to med school at Weill Cornell in NYC. If you like, i can ask him if he knows anyone in the Tri State Area. Or you can call Kohlbrenner for a referral in the Tri State area.

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@rx2rich

Yes I had a mri I April to determine why I have neuropathy in my legs and feet. They discovered, per the report, at least a 7.5 mass on right kidney. Highly suspected renal cell carcinoma.. so I have been put in for a cat scan with contrast. But haven't gotten that yet either. Nor a dr appointment.. I'm frustrated but I have not gotten any response 😒

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Was the neuropathy caused by the kidney tumor?

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@colleenyoung

@pamelacap, you are asking great questions and doing your homework. Active surveillance can be a viable option in many cases and depending on your preferences.

I'm tagging @mb4414 @sonshine161 @deebee41 who can further share their decision making criteria about cryotherapy.

I'm sure you read this or similar already, but just in case here is information from cryoablation treatement from Mayo Clinic:
- Cryoablation for cancer https://www.mayoclinic.org/tests-procedures/cryoablation-for-cancer/about/pac-20385216

To inquire if you can use telemed or virtual evaluation at Mayo Clinic to see if you are are candidate for cyroablation, you can talk to an appointment coordinator. Start here: http://mayocl.in/1mtmR63

Pamela, has anyone suggested a biopsy to confirm if it is cancerous or a benign cyst?

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Thank you for your helpful response, Colleen. The appointment coordinator set me up with an appointment for scans and tests and an evaluation with a urologist in Rochester. I am still trying to determine if the urologist or the interventional radiologist is the provider to evaluate the mass for cryoablation.

I have not had a biopsy as both providers consulted here in NYC wanted to go right to the procedure as was @sonshine161 experience.

I am curious to know if anyone can share how long/hard the recovery from partial nephrectomy was for them? I am drawn to the cryoablation for the recovery time and the success rate. The data on each procedure seems to be based on 5 year survival so cryoablation is a great choice for the first step IMHO.

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@sonshine161

My son is an interventional radiologist who went to med school at Weill Cornell in NYC. If you like, i can ask him if he knows anyone in the Tri State Area. Or you can call Kohlbrenner for a referral in the Tri State area.

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Serendipity! I would value your son's opinion if he does feel strongly about an east coast colleague. Your experience with Kohlbrenner carries a lot of weight, too, however!

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@pamelacap

Serendipity! I would value your son's opinion if he does feel strongly about an east coast colleague. Your experience with Kohlbrenner carries a lot of weight, too, however!

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My son said he's been gone too long from Weill Cornell to make a referral. I suggest following up with Kohlbrenner or one of the major medical institutions closer to you.

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@sonshine161

My son said he's been gone too long from Weill Cornell to make a referral. I suggest following up with Kohlbrenner or one of the major medical institutions closer to you.

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Thanks for trying, it is so kind of you.

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