Complex regional pain syndrome (CRPS) and feeling blank

Thank you for this yeah I have definitely been trying to educate myself with this as I am very aware the crps has affected me in several ways the battle continues wish there was a chat room available for crps and chronic pain I have not been so lucky to find one yet

Interesting. Thank you for the video.

What do you hope to gain from a chat room? I'm not aware of them. Can you explain?

To have a group that can post real time and be there for someone at anytime

I see. Have you tried CRPS Facebook groups? There seem to be CRPS chat groups out there. Have you Googled? I do caution however that not all sites are as reputable or monitored with guidelines and rules like Mayo Clinic Connect. My concern would be that the space may offer false medical information or be toxic in negativity.

Have you participated in this CRPS conversation yet?

You will find members like @drg24242, @sprinrosa64 and @grannyzoo who may want to chat.

How has your day been? Any fun distractions?

The building in Rochester is amazing. So much history to learn about too while you are in between appointments, and puzzles. That was one of the best experiences, puzzles everywhere.

Thanks I agree chats can be filled with alot of negative vibes I will pursue other means of networking I will checkout what you sent . Today is a rest day its pouring rain here went with family and friends to legoland yesterday was a rough go with the leg got tired had some swelling and it was super hot here but I made it through the day hit my pt/ot appointment today and now enjoy some down time

Hey, that's a great day out! I bet Legoland is pretty cool. I've never been.

Having a day like that can easily become a push/crash kind of day, like swelling and tiredness. It's so easy to want to push beyond limits in the moment of fun. I still do on occasion but have done so much better having learned tools to self-manage.

Here's a conversation I started -
Moderation and Modification: How can it help your chronic pain:
https://connect.mayoclinic.org/discussion/moderation-and-modification-how-can-you-benefit/

Having been through the Mayo Clinic Pain Rehabilitation Center, I like to share what I learned that has helped me and I hope will help others. Much of it is common sense when you really think about it, but in our painful moments we can lose track of common sense and just want to do what we want to do! Ugh, the battles.

Anyhow, I hope the conversation helps give some pointers and inspiration. How have you already implemented moderation and modification in your self-care? Has it helped?

I was dignosed in 1982.
I have found so much help from
RSDSA
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) mission is to provide support, education, and hope to all affected by the pain and disability of CRPS/RSD, while we drive research to develop better treatments and a cure.

Welcome @lovedbygod, Thank you for sharing the resource you have found so much help from.
I thought I would share the link to the RSDSA website for you since new members are not able to post links for a short period of time to prevent spammers from posting advertisements.

-- Reflex Sympathetic Dystrophy Syndrome Association (RSDSA):
https://rsds.org/

Are you able to share a little more about the type of help you received from the RSDSA website?