cromolin sodium nebulizing have you heard about it?
My immunologist suggested nebulizing with cromolin sodium 4ml twice a day instead of budesonide. She says its also anti inflamatory but it is not a steroid. I am still taking MAC meds (I have converted last september so there are a few month more if things stay the same)and I am so anxious to use steroids. I think I need them because when I stop, which I tried, I have tight chest. So if you used cromolin or heard about it please let me know. I am seeing my pulmonologist in August so I will also discuss with her otherwise when I email her her nurse answers in a couple of days unless its an emergency.
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Hi Lilianna,
I share your wariness of steroids. I have never heard of cromolyn but found this information which hopefully will be helpful:
https://www.mayoclinic.org/drugs-supplements/cromolyn-inhalation-route/proper-use/drg-20067594
Best of luck to you!