Mayo Clinic Connect
I had surgery in the summer of 2015 for a craniopharyngioma. Anyone else been thru this? RubyJane
Hello! Sorry for the delayed response. My surgery went well and they were able to remove more of the tumor than expected. Pathology results came back with a Null Cell Pituitary Adenoma diagnosis vs craniopharyngioma. I’m working on managing post surgery symptoms of headaches, dizziness and fatigue. We do not yet have a treatment plan, but the doctors indicated that it is not necessary to rush into this phase. Hope all is well with the rest of the group.
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Such great news, Susie! All the best with managing the post-surgical symptoms. Please keep us posted.
@craniodaughter here's the link to the in-person support group in Rochester https://www.brainstogetherforacure.org/find-support/
Thanks for the info, @cads. Do they sometimes have guest speakers or is it usually a time for peers to get together and share.
Liked by Teresa, Volunteer Mentor
BTFC is comprised of patients, caregivers and medical advisor. Everyone gathers for welcome, introductions, announcements, then breaks into 2 groups (patients and caregivers). Physician spends time with each group. It’s a nice blend of seasoned patients and those newly diagnosed. From time-to-time a special speaker may be present.
I thought you might like to know about the upcoming Brains Together For a Cure event. Here's more info: https://connect.mayoclinic.org/page/cancer-education-center/newsfeed-post/brain-tumor-patient-and-family-education-symposium/
Hopefully as the weather gets nicer, you'll be able to make it. For anyone who attends, it would be great to get a synopsis.
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